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The Importance of Having a Health Advocate in Your Life

Posted: 07/07/11 10:58 PM ET

Ever wonder why just the right person comes into your life at just the right moment sometimes? I think everybody has experienced this at one point or another; isn't it a wonderful thing when it happens?

I met Beth Maloney about two years ago when she contacted me after reading my book, "Becoming Whole" about my recovery from invasive breast cancer (after losing my leg to bone cancer). At that time she shared a copy of her own book with me "Saving Sammy" about her son's incredible odyssey to regain his health. Beth and I found that we had a lot in common and became good friends.

Beth's story in a nutshell: Her son was in fifth grade when he had a sudden onset of debilitating Obsessive Compulsive Disorder and later Tourette's Syndrome. He suddenly had a debilitating mental illness, and as a result he could no longer go to school. He continued to get worse.

Beth made a deal with God at that point, promising to educate people about Sammy's illness if she could get to the bottom of it. His condition had deteriorated to the point that she no longer could care for him at home.

And then she had a breakthrough. Her mother had been told about a doctor who had some success treating children with sudden-onset OCD caused by strep, with antibiotics. Against all odds, Beth took Sammy to New Jersey to be evaluated. Travel was an arduous task in and of itself.

The doctor believed that Sammy had gotten a strep infection that went to the brain instead of the throat (this is called PANDAS), and that was the reason for the severe change in his behavior. Sammy was put on a high dose of antibiotics -- and after some trial and error -- the medication started to work. Within a year, Sammy was better and able to go back to school. Three years later, he was off the antibiotics and finishing up high school. He is now attending university.

And now Beth is keeping her promise. She chronicled the experience in her book and has been traversing the country, reaching out to doctors and others to help them understand that sudden-onset OCD and other sudden behavioral conditions can be caused by a strep infection.

Yes, strep. All it takes is a test that many doctors will not order -- mainly because they don't believe that PANDAS exists. So Beth is telling her story, advocating for others in the same position to help them in approaching their doctors -- and many times educating the doctors as well.

Similarly, I spend a lot of my life putting together events where I can help people understand the benefits of eating a plant-based diet. Improving my way of eating helped me save my life after a mastectomy, chemo and radiation. When I started eating this way almost 13 years ago, after I had read about people changing to a plant-based diet and healing from their supposedly terminal cancers, most people thought I was crazy. As time went on and I stayed cancer-free -- and eventually healed from a host of other maladies such as ulcerative colitis, sinus problems, sleep problems and a heart arrhythmia -- I started teaching others how to eat and cook this way. I wanted to shout it from the rooftops!

I encountered resistance from my doctors, but as time has gone on, research has proved that eating a plant-based diet is indeed the best way to prevent and heal the major illnesses in America today: heart disease, cancer and diabetes.

Beth and I are kindred spirits. I greatly admire her for putting out a message about advocating for yourself and the people you love -- especially when it comes to health issues. With all of the doctors I've dealt with over the years, I understand the importance of this.

But even someone who has learned to trust -- and go with -- her gut needs a little nudge or boost sometimes, including me. I've had a lot of challenges over the past 20 years with getting a prosthetic leg to fit properly. Many surgeries later, I'm still on crutches. I'm considering another surgery on my residual limb ... but I want to be sure that the next surgeon doesn't just do the same thing that's been tried repeatedly already. I need something different and it doesn't seem like it's beyond the scope of possibility.

Watching Beth in action inspires me! I love hearing the stories about people she has inspired to advocate for their children. For instance, she encountered a child misdiagnosed with autism, who, in fact, had late-stage Lyme disease. The parents had not known to suggest a more advanced test that eventually led to the correct diagnosis. Because of Beth, this family found out about the test and learned how to ask for it. As a result, the child was successfully treated.

Beth Maloney is a very good person to have in my life right now because she continues to inspire me to advocate on my own behalf and get the information I need to be able to make a good decision about what comes next with my leg.

This is so important because it can be a life-or-death decision in some cases, like Sammy's. For me, it is a quality-of-life issue -- walking or not walking -- and being able to bear weight on a prosthesis without pain.

I hope you have someone like Beth in your life to keep you on track and focused!

* * * * * * * * * * * * * * *

Do you have someone in your life that has shown up just when you needed guidance, counsel or inspiration? Please share your own story or comments here.

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gypsynomad
I dwell in possibility.
05:49 PM on 08/15/2011
Hiya, Meg..just checking upon you and to see any new ones up that I may have missed. Take care...Gypsy
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04:23 AM on 08/16/2011
Hi, gypsy. I couldn't reply in the other place, and want to do with this, that may interest you. "To Have or to Be?" Erich Fromm
http://en.wikipedia.org/wiki/To_Have_or_to_Be%3F
Have a good morning and day. And I sure don't want to be famous... :-)
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gypsynomad
I dwell in possibility.
08:12 AM on 08/16/2011
Every time I see you in the morning, my day goes so much better, LP. You know why ? You have layers of depth within you ,I couldn`t open the site, no longer there, but I went on and read one review, something like ~ true loving is an effortful activity. While accumulating knowledge is the way of having, the being mode of knowing is a process of understanding. ~, I will find out more. Yes, I do not want to be famous either, just want to exist in the way I want to just be. You have a lovely existance, see you more, we are a world apart but it is lovely the way you know how to connect. Don`t go too far...
I was looking for Meg, I was missing her so I stopped by. Cara is also taking some time off, so I am talking plenty over there also. What can I say, that`s how I am...Hugs..Gypsy.
05:23 PM on 07/15/2011
DX with Invasive Lobular Breast cancer...a string of tumors, largest 5cm. Mastectomy. Before chemo tested my bones and organs. Tests revealed "activity" at the base of my neck, a mass on my liver. Both physicians diagnosed cancer, given my history, chemo was cancelled to only treat my future symptoms in my now stage 4 cancer. My daughter became very frustrated, I just accepted. Had been in the BCCCP for years and they covered me. My daughter called the California BCCCP, asked if I could be treated there. They were horrified by my story, contacted the CA Dept of Health, who contacted the head of the DOH in Hawaii. They set up an 8-way telephone conference, including DOHs, BCCCP reps, doctor, health coordinator, and myself. Gave me three options: stay on Kauai flying to Oahu for treatments, go to CA or move to Oahu. I chose Oahu- I was leaving my abusive husband of 34 years (another story!) anyway & my daughter was finishing school there. They set me up with a wonderful doctor, new tests...saw that the spine activity was recent trauma, liver mass a group of twisted blood vessels from birth. Started aggressive chemo, 7 weeks of radiation.
4 years and so far so good! I exercise, no sugar, meat, dairy and the white stuff. If it hadn't been for my wonderful daughter stepping in as my health advocate, probably would have been a very different outcome.
Thanks for your inspiring books Meg!
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henriette and hube
love just is; golden in it's simplicity
11:10 PM on 07/15/2011
Thanks for sharing your story Sue. Glad that you are doing well. What a beautiful daughter you have.
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gypsynomad
I dwell in possibility.
07:24 AM on 07/16/2011
Take care Sue,what a lovely daughter you have, I suppose mama raised her right , you have come to the right place Meg`s thread...;)....
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09:41 AM on 07/15/2011
Love this article, Meg! What you say is so true ...
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megwolff
Plant-based cook & survivor
01:19 PM on 07/15/2011
Hi chandra, Thanks for your support! What rings true to you in this article?
08:56 AM on 07/15/2011
It's important to have advocates for most areas of life and I can't think of more important aspect of life than health. Great article!
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megwolff
Plant-based cook & survivor
09:49 AM on 07/15/2011
Hello 2bhealthy, You are so right! ... "I can't think of more important aspect of life than health." Here's to health! Thanks for your comment.
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gypsynomad
I dwell in possibility.
07:46 AM on 07/15/2011
Good Morning Meg...this is a story should make anyone fully alert and not to neglect any symptom one may see ? So Beth`s Son was never treated initially and then one lead to another ? I am so glad you found a kindered spirit in Beth. I have a dear friend we became close then duty called I had to leave,she cried and said ,"I thought we are going to get old together" we are on phone every day and made a promise to visit each other once a year, she kept her side of the promise.
I am so sorry that you need to have another surgery ,I hope the surgeon does it right this time. You know Meg ,my association with you made me chage my diet and I feels so much better actually .Besides that too embarrassed to admit certain times I am into that ~me,me ~ phase ,thinking of you snaps me right back to reality.You are such a positive influence to all you come across with, not only with your amazing advise on diet but your in general outlook to the world and I am in awe. Always learning.......Much Love....Gypsy
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megwolff
Plant-based cook & survivor
09:06 AM on 07/15/2011
Hi gypsy, As I understand it ... he acquired the strep infection but the symptoms did not present as they usually do – a sore throat or sometimes as heart problems (rheumatic fever is also caused by untreated strep) – it went to his brain and it presented as the OCD and later Tourette's Syndrome. Because this is not commonly known it was instead diagnoseded as mental illness and treated as such with no relief... he continued to get much worse. He wasn't treated for strep because they didn't known he had it ...

Gypsy, You changed your way of eating? That's excellent, keep up the good work! Thanks for all your kindness and good energy you put out into the world!
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gypsynomad
I dwell in possibility.
12:15 PM on 07/15/2011
Indeed...not a vegetarian but berries, nuts, greens (organic), lentils,quinoa, brown bread..working wonders..thanks to you Meg. I have to be more vigilant for your upcoming posts, the management at site have been ..hmm , shall I say ...a bit sloppy ?...Hugs
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gypsynomad
I dwell in possibility.
05:56 PM on 07/14/2011
Honest to goodness Meg !!
As usual I was not notified, just got your email, thanks, please note, that was an excellent idea to send an email to all of your fans, I am a huge fan as you know . I was away also...gotta go but do not leave, I am coming back tomorrow to read more and chat with you. Big Hugs....Gypsy
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megwolff
Plant-based cook & survivor
06:43 PM on 07/14/2011
Hi gypsy,
I was hoping you'd drop by. Hmmm... no email notification? I am glad I sent out that blurb. Look forward to your coming back by. I have a surprise for you. Until then ... xo
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gypsynomad
I dwell in possibility.
09:22 PM on 07/14/2011
Had to peek, I love surprises , can`t wait till tomorrow. I just read you, could be your soulmate in a heartbeat, Meg ,but I am so far, in sorry OH, so our online friendship
would do for now......
I have something for you too but it is personal in nature. Let me know if your email is private or an open site, I get confused with those. if it could be just between us then I would write.
Tomorrow it is...
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henriette and hube
love just is; golden in it's simplicity
01:17 PM on 07/14/2011
Good article! It is important to have an advocate buddy. I am blessed with an exceptional very best friend and soul mate who does a pretty good job of keeping me on track and focused but more important, she's always there for me as I hope I am for her. My life would be empty and unbearable without her.

I don't know anyone who has autism but do have some with health issues who I shall forward this article to as it's important to have a support system in one's life. In fact it's crucial in my opinion.

As always your articles are precious and important.

Sorry you are having problems with your leg/prothetic Meg. I do hope someone can manage to make walking less painful for you. Bless you.
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megwolff
Plant-based cook & survivor
04:40 PM on 07/14/2011
Hi henriette and hube,
Thank you for stopping by! So glad that you too have a friend and soul mate who keeps you on track, too. Where would we be without our friends!?

Thanks for forwarding my article to your friends... I hope it helps others have a good ending to their stories like Beth's and mine (on the cancer, anyway!)!

As for my leg, it is what it is... but, I believe everything happens for a reason and I know there are other amputees out there with the exact same problem because I've met them. If there is an answer to this, I'll find it ... and I believe there is. I won't go into detail, but to me this shouldn't be rocket science. Stay tuned.

H and H, thank you for taking the time for a heart-felt comment. Please stop by again.

I love your "behold a brand new day."
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gypsynomad
I dwell in possibility.
07:50 AM on 07/15/2011
H&H , you have a soul mate and I am sure she says the same thing about you , I am positive you yourself is an awsome person too , take care....;)
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henriette and hube
love just is; golden in it's simplicity
01:02 AM on 07/16/2011
Thank you.
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megwolff
Plant-based cook & survivor
07:20 AM on 07/14/2011
Hi Jill, Thanks for your comment. Yes, please share this information as it my help a lot of families from suffering and others to not give up!
07:40 AM on 07/14/2011
Thanks Meg for your atricle, You are an inspiration and a health advocate to so many world wide. I will pass on your article to my students and friends here in Scotland.
With love
Marlene Watson-Tara
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megwolff
Plant-based cook & survivor
08:20 AM on 07/14/2011
Hi Marlene, Nice hearing from you and thank YOU for being an advocate!
11:07 PM on 07/13/2011
Meg, Wonderful article! This will open the eyes of many people and Beth's book will be a great read from cover to cover I am sure. Thanks! Jillian Lauren Lisitano