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Melanie Notkin

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The Invisible Infertility

Posted: 08/16/11 01:46 PM ET

Dinner started off simple enough, three friends in their mid-thirties catching up on each other's lives. One was a married mom of two kids. One was a newly married woman, pregnant with her first. And one was a single woman about to lose another unfertilized egg hours later. I was the latter.

The conversation turned to maternity, the two who had the common experience of pregnancy shared stories about the challenges of a burgeoning bump. Then they went through the list of mutual friends expecting a first, second, or third. And finally they talked about one of the friend's younger sisters, recently married and having trouble conceiving. Understandably, the conversation got solemn, and I got quiet, as they shared thoughts on the grieving of the young couple. The topic went on past the appetizers well into half a bowl of pasta... and I lost it.

"Stop talking about babies!" I shouted in a very uncharacteristic way. A passing waiter stumbled with his tray and my friends awkwardly changed the subject, but not before looking at me like I was inappropriate.

Later that night, the mom of two called me out on my outburst. "I've never heard you like that," she softly scolded. "I'm sorry," I said, "but I just couldn't take it anymore. We had been talking about motherhood and pregnancy and infertility the entire time out. Don't you know I want to be a mother too? It's like my inability to have a child is invisible to you."

"It's different for you," she immediately responded. "You're not even married!" "Exactly," I replied. "I'm 36 years old and not even married. I am years behind your younger sister who at least gets to try to have children. I get to try to go on a date." And then, as if on dramatic cue, I went to the ladies room to dry my inner tears and noticed I had lost that egg.

Last month I published a post here called "The Truth About Childless Women," and hit a nerve. It went viral, shared over eleven thousand times on Facebook alone. In it I talked about the grief of childless women who suffer from what I call "circumstantial infertility," the inability to have children because one doesn't have a partner with whom to conceive. Of women ages 40-44, for example, 19 percent are childless -- almost one in five American women in that age bracket. Pew Research reports that among that group, about half have chosen not to be mothers. The other half suffer from infertility, and not all biological.

"How DARE you?" opined the commenter on the "Truth" post. The twenty-something told me that the grief of a married biologically infertile couple was deeper than mine and I was wrong to compare the grief or to call it 'infertility.' They suffered, the commenter inferred, from real infertility. Well commenters are allowed their opinions but when I noticed it was written by a young man, I was taken aback. There is no doubt that men suffer the grief of infertility, too. I do sympathize. And while there are many women who are childfree by choice, a very valid choice, many women have a biological urge to conceive a child and to be pregnant. It's how we are built. And every month, there's a physical reminder that we have failed to be who we believed we were born to be -- mothers. (There is little coincidence to the fact that with menstruation, there is physical pain and blood, often associated with death.)

Stephanie Baffone, LPCMH, NCC, grief counselor and married woman who suffers from biological infertility, writes in an article on SavvyAuntie.com that what women like me go through is called 'disenfranchised grief,' or a grief that isn't recognized by society with legitimacy. For women like me, we not only grieve the loss of motherhood, but we also grieve the loss of the dream, the dream of finding love and marriage resulting in that beautiful baby carriage. And not only do we grieve childlessness alone, with no partner to console us or share the grief, but society as a whole won't let us grieve, as if we've brought it on ourselves by being unwilling to settle in love. As Baffone articulates so beautifully in her article, "has compassion for victims of infertility become the proverbial carrot on a stick, reserved exclusively for those considered by the masses to have legitimately, 'tried hard enough?'"

I awoke to an email a couple of days after "The Truth" had been circulating from a woman I do not know (who does not know me) who chided me for not adopting. "If you were really maternal, you would adopt a kid," she scolded. Followed by "If you want to remain the 'auntie', the godmother, etc... then you're not really mother-material."

I honor single mothers and want-to-be-mothers who have invested time and money in adopting or conceiving a child alone. I am comfortable in my choice to not be a single mother, or even try to be a single mother. The grief I've seen and heard of women who tried to conceive through IVF and couldn't or the ones who adopted only to have the biological father take the child back, well frankly those are not losses I want to grieve alone. And those are just a couple of reasons. What one can trust is that I've considered the options. For me, finding love is my only honest choice.

Thankfully, my friend's sister and brother-in-law went on to have beautiful twins, a boy and a girl. My friend went on to have her third. And six years later, I'm still looking for love.

I write this on the eve of what would have been my own mother's 75th birthday. Upon returning to college after the Shiva period some 22 years ago, a classmate expressed his sympathy having known my mother since childhood. "The semester is almost over," he said. "Why don't you just take the rest of it off to grieve?" Without flinching I replied, "My mother died, I didn't."

I move on; I celebrate my maternal instincts with my nephew and nieces and all the children who come my way. I allow myself now and again the time to grieve. But then life, the life my mother gave me, goes on.

 
 
 

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12:11 PM on 08/24/2011
I get the author's pain. I've been in that boat. I know plenty of women in that boat. It is not the same as being emotionally, financially, circumstantially ready to have a child and physically not be able to. I am going to wager that it would be easier for this woman to get married than it would be for someone who is biologically infertile to have a child. And I'd be willing to bet she hasn't put the same amount of time, energy, resources or research into finding a mate as most infertiles put into trying to conceive. I sympathize/empathize with not wanting to sit through a dinner of baby talk, longing to be married and start a family. I get the stress of getting older and not finding anyone. But I don't believe most in her situation have made or even comprehend the financial/emotional sacrifices infertile people make to achieve their dreams (talk about settling, you think people dreamt of having a child with someone else's sperm or egg or of adopting). And not all couples share their infertility in a positive way. Infertility is mega stressful on a relationship. Call her situation unfortunate, worthy of sympathy, painful. But to call her situation infertility? NO.
08:49 AM on 09/22/2011
Yes, I don't think infertile is the best word. Infertility is an actual medical condition, and only recently really getting the media attention (and subsequent dialogue) about it out and into the mainstream. I think "involuntary childless" (which she also coined I think?) is far better. Also, I think both need to be talked about - real infertility And the issue of childless not through choice (which assumes fertility is an option) - and this can only happen if both are seen as distinct issues and not conflated as one.

However, the other issue about "involuntary childlessness" is of course, if one waits too long one is likely to become infertile through age, and as well, if one has never attempted pregnancy, could, in fact be infertile without knowing it.
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Kelley Harrell
Neoshaman; author of 'Gift of the Dreamtime'
01:37 PM on 08/22/2011
It's a challenge in our culture to honor a full array of archetypes of Woman. We must face the grief of falling short on any of them along with the guilt of achieving any of them. It's not easy for any of us.
Blessings to you.
06:50 PM on 08/19/2011
I understand this, but I'm sorry, I would just adopt or use a donor. You seem to have a good support system, but you're getting older and your dreams of having a child are going right out the window unless you meet a true love, get married, and get pregnant in 4-6 years which would be amazing considering the risks of having children in your late 30's early 40's. I can respect your opinion but I would adopt/use a donor and be a mom instead of waiting on true love. That's just me though.
05:08 PM on 08/18/2011
what a great article! You've put into words what I have been feeling for quite some time! Today, most people are getting married later in life, choosing to put their careers first and build up a nest egg. I commend them for the fact that although most could have kids, they chose not to. Being a parent isn't a part-time job, or something that can be easily undone once the process begins.
I agree with you too, that true love was going to be the only way for me.

However, now happily married, my husband and I have decided to post pone any baby plans until we are emotionally, mentally and more financially more stable. We are also taking care of elderly parents, which take a lot of time from us as well. I am quite clear on the fact the grains of sand is running out from my biological hourglass clock, and perhaps I will never get to experience the joys of becoming a mother... however, I cannot mourn my days for a life that could or could not happen. Instead, I can only live the life that is present now.
08:53 AM on 09/22/2011
I certainly wouldn't wait too long. Biology (eggs deteriorating) is a very real fact. No matter how much you love your husband or feel young. Also, as a mother of 4, I can tell you there is never EVER a "right time" to have kids. You might find you have other priorities right now (taking care of aging parents) but life is random, and things happen. There is never the perfect time to have kids, but before you have children it's hard to really understand that.

You might want to read this:

http://www.nytimes.com/2011/09/01/fashion/fertility-is-a-matter-of-age-no-matter-how-young-a-woman-looks.html?_r=1&scp=1&sq=fertility&st=cse

In any case, I wish you well.
11:43 AM on 08/18/2011
I'm in my late 50's, and childless not by choice, but was unable to conceive when I was married, and even after as a single person. It's true that single people are often overlooked as grieving for the possibility of having children, and people just assume that "you will get over it". It takes many years to resolve those feelings, and frankly, I don't think I can ever totally resolve those feelings of "what could have been". I never really found a partner(except for my husband who passed away at a too young age) who I would have considered "father material" even if I could have conceived or adopted. I have accepted that I will never have children, but there is that bittersweet feeling of missing out on one of life's basic experiences. As I get older, though, I have found that it is easier to accept what life has given me.
09:39 AM on 08/18/2011
Interesting article. I have mixed feelings about this. I am getting older also and definitely feel my bioloigcal clock kicking into over drive. Most of my friends are married, have children or beginning to have children. But I dont seek sympathy from them, nor do I feel 'left out.' I celebrate there happiness and hope for my own.

Now finding love is another issue. :) Good luck with that! Lovely article.
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Dorothy Moody
Secular Humanist, Independent, Goofball
07:53 PM on 08/17/2011
Thank you, Melanie! I'm going through this right now. I've finally decided to do it on my own and, of course, the finding the sperm part is the barrier to becoming pregnant. While I'm happy for all of my friends who are parents, I'm also a bit resentful that they didn't have to arrange for a donor or pay for sperm.
03:12 PM on 08/17/2011
I thought this brought up some very good points. We don't often see society sympathize with progressively older singles who would rather be part of a romantic connection, or be parents. I myself have at times thought that those folks needed to either try harder or have more realistic standards, but I should obviously respect their right to search for exactly what they want. It is a sad thing that some people, despite their efforts, have been unable to find someone to share the joy of parenthood or at least couplehood together.

The one thing that surprised me was towards the end, when she was being offered the very sympathy from an outsider in society that she laments the absence of, she rejected it, or at least was loathe to accept it. Granted, society has no shortage of sympathy for grief after a family member's death, and they have virtually none for the aging singles, but this felt odd to me.
09:36 AM on 08/17/2011
Thank you for writing about this sensitive topic, I think it takes a lot of courage and this article really resonated with me.
09:15 AM on 08/17/2011
Thank you for sharing your story. As a woman suffering from biological infertility (PCOS/endo/two failed IUIs and a failed IVF), I acknowledge that your pain is different from mine, but surely just as searing and heartbreaking. I am one of the 11,000 who shared your initial article on facebook. I think you serve as a great reminder that no one "owns" sorrow and that it is important to have compassion for others. Especially among women, I see an appalling lack of that compassion, a tragedy that you have eloquently captured here.
08:25 AM on 08/17/2011
Thank you for your post, I really identified with it and it was such a relief to discover that I'm not the only woman in the world dealing with these kinds of feelings.

I am a woman in my mid-thirties, and much like yourself, finding love is my only honest choice. It's not just that I want a baby, I want the whole package: the partnership, the family unit and, the love and support that comes from a strong relationship.

Ttwo years ago found out that I suffer from Polycystic Ovarian Syndrome, so aside from the lack of a partner and the age-associated loss of fertility I have the joy of malfunctioning ovaries to throw into the mix - lucky me. I'm struggling with it, I can tell you and I think if I hear one more of my friends say "oh don't worry, you're still young", or "you'll meet the right man" I may very well scream, or punch them in face...not sure which.

I think I still hope that it will happen, but I am taking steps to ensure that my life is going to be the best it can regardless of whether or not I meet the right man and we have a family. I'm doing my best to allow myself those small moments of grief and then get on with living an amazing life.
08:09 AM on 08/17/2011
I applaud you for your honesty and heart felt, well spoken comments. I am a single 46 year old woman who is fortunate to not have wanted children. I say this because if I had wanted them it would not have changed my circumstances of not having a partner to have them with. I have seen how my friends, especially single ones, who have suffered with a helpless desperation as they search for a partner before they are too old to be able to conceive. My sister-in-law wanted nothing more than to have children, but they have been unable to conceive. It's all really hard, but I have to say being alone is hard enough. I look a lot younger than my age and I too get those questions about if I want children, or it's not too late and I also get tired when I am in the company of mothers who talk incessantly of their children. For them their children are their life and as a single non mother, my life is something totally different. Luckily for me it's not heart breaking to hear, just tiresome.
11:35 PM on 08/16/2011
I was married and infertile. Then I was divorced and single and infertile. Both suck pretty badly. I can't decide if one is worse than the other. I do know that I have few "friends" who understand. I did look into adoption once it was an option, and it didn't work out. Grateful to have tried, but it's really hard for a single woman.

It does seem that once I got divorced after 14 years of marriage (and almost 10 years spent trying to have a family), that everyone seemed to think I would be "over" the "kid" part. I wasn't over it yet. And sometimes I wonder if the fact that I was childless for good hurt more than the fact that I was divorced. I lost my whole identity because by that time in my life, my identity was wrapped up in being a wife who was trying to become a mother and had been trying for a very long time.

I'm resolved to it now, but I still have tough times. yes, there are days when I see it was best I didn't have kids (like when my single-mother friends have to see their ex-husbands to drop off the kids), but there are also times when I really wish I could have been lucky enough.

This article helps me feel a little more normal with my own feelings. Thank you.
07:17 PM on 08/16/2011
Hi Melanie

I love this piece because it helped me to connect with what's going under the smiling, friendly and charming persona that is 'savvy auntie'. The invisibility of your 'infertility' - the same one that I went through, is heartbreaking on the inside and, yes, seemingly invisible to others.

The 'why don't you adopt' comment is also often unintentionally cruel - because in reality not that many women I know would either pass the criteria to adopt nor are they wealthy enough to bring up a child alone. And yet to point this out to well-meaning friends and onlookers can make them sound petulant or picky - or even invite the "well then you obviously don't really want a child" comment.

I'm 47 now and have come to terms with not having a family. It wasn't easy - I had to 'grieve for the life unlived'. But once I'd come through that, I found a new zest for living again, and have channeled all that loving 'maternal' energy into exciting new projects: training as a psychotherapist, writing and setting up Gateway Women. Gateway Women's mission is to support, inspire and empower women without children 35+- both those still hoping for a baby (like yourself) and those a bit older and post-fertile (like me) who are making the unexpected adjustment to a childfree life.

Thanks for your honesty Melanie. I hope it works out for you. Big hugs, Jody x
05:49 PM on 08/16/2011
Well said and poignant. Thank you for your article and increasing my awareness.