iOS app Android app

Childhood Cancer Awareness Month

Awareness... What A Bullsh*t Word

Erin Santos | Posted 11.10.2013 | Parents
Erin Santos

Times are changing. These kids are fighting harder and longer. Their stories are getting out there because the chemo drugs are not curing kids, but they are extending their lives. People ARE aware of them. Awareness of pediatric cancer is out there. But now we are getting stalled because the movement is not moving.

Allowing a Child's Dream to Take Shape - Childhood Cancer Awareness Month

Jay Scott | Posted 11.05.2013 | Impact
Jay Scott

When my daughter, Alexandra "Alex" Scott, told a reporter in 2004 that she wanted to raise $1 million to help find a cure for childhood cancer, the first thing that went through many people's minds (including mine) was -- that's impossible.

Thanks for Nothing, Mr. President

Jonathan Agin | Posted 11.04.2013 | Impact
Jonathan Agin

Lighting the White House gold would not cure any children or provide additional research funding. But that is not the point.

Childhood Cancer Awareness Month: 8 Brutal Truths to Choke On

Suzanne Leigh | Posted 11.03.2013 | Impact
Suzanne Leigh

As a parent who lost her child to a brain tumor, I'm commemorating September's Childhood Cancer Awareness Month by red-flagging those obstacles that prevent us from raising survival rates for our youngest warriors.

How Far Would You Go... A Million Miles?

Jay Scott | Posted 08.13.2013 | Impact
Jay Scott

There aren't many certainties in this life, but one thing I know for sure is that when your child is sick, fighting a life-threatening illness, as a parent, you would do anything to cure them.

Open Letter to President Obama

Jonathan Agin | Posted 03.24.2013 | Impact
Jonathan Agin

I wanted to take this opportunity to bring to light an issue that I think deserves much more awareness and attention on the federal level. Childhood cancer. Childhood cancer is the number one disease killer of our children in this country. Were you aware of this fact?

After Losing 2 Friends To Cancer, Teen Makes Documentary About Disease

snellville.patch.com | Posted 10.11.2012 | Impact

Emily Good defies the image of a stereotypical “me generation” teen. Not one to shy away from pain or suffering, she pours herself into the middle...

Will Childhood Cancer Awareness Month Ever Measure Up To 'Pinktober?'

Jay Scott | Posted 12.10.2012 | Impact
Jay Scott

Another National Childhood Cancer Awareness Month has come and gone, and as we look back, we can't help but ponder -- is the country more aware of the...

Donna's Cancer Story: The End

Sheila Quirke | Posted 12.01.2012 | Parents
Sheila Quirke

At bedtime, Donna said to me out of the blue, "Why am I worried I'm dying?" Donna told me she was hearing things her body was telling her.

Donna's Cancer Story: Choosing Hope

Sheila Quirke | Posted 11.30.2012 | Parents
Sheila Quirke

As much as I hoped for a healthy Donna, there were other things I hoped, and still hope for. Hope that there will be another day with Donna. Hope to find the joy in life. Hope to not become bitter or angry. Hope that Donna would find the world a lovely, beautiful, wondrous place.

Donna's Cancer Story: Whiplash

Sheila Quirke | Posted 11.29.2012 | Parents
Sheila Quirke

When you are new to treatment, you turn away from the sobbing, wailing parents in the halls because their pain is too close, too scary and too unbearable. It is their pain, not your pain, and you don't want to be near it. Until it is your turn and it becomes your pain.

Donna's Cancer Story: The Bubble

Sheila Quirke | Posted 11.28.2012 | Parents
Sheila Quirke

To be with Donna could be heartbreaking, and sometimes impossible, if we allowed ourselves to think about her death. We learned to detach from the reality of her dying in her presence. I think, if we were different parents, it could have easily gone the other way -- detaching from Donna. That was unacceptable.

Donna's Cancer Story: Terminal

Sheila Quirke | Posted 11.27.2012 | Parents
Sheila Quirke

I put on blue rubber gloves to protect my skin from the poison I stirred into her pudding and ice cream. God help me. It is heart-wrenching to spoon-feed your daughter poison that you know, at its optimum, will provide a few more weeks to her cruelly young life. But that is precisely what we did.

Donna's Cancer Story: Infection

Sheila Quirke | Posted 11.26.2012 | Parents
Sheila Quirke

You see, the wind blew with Donna's health. When she was well, we were well. When she struggled, we struggled. She had no inclination to wallow in or pity her situation. She wanted to live. She knew, intuitively, that life was a privilege and she did not waste a moment of hers.

Donna's Cancer Story: Blooming in Bloomington

Sheila Quirke | Posted 11.25.2012 | Parents
Sheila Quirke

The Propofol looked like milk snaking its was through Donna's "tubey" into her port. Within seconds, I would watch her nod off as I whispered into her ear, "Never forget that you're amazing."

Teen Dying Of Cancer Launches Viral 'Thumbs Up' Campaign

Posted 09.24.2012 | Impact

Lane Goodwin may not get the miracle he needs to beat back the rare cancer that put him in a hospice this week, but the 13-year-old got 100,000 people...

Choosing What to See

Judith Hannan | Posted 11.24.2012 | Parents
Judith Hannan

My challenge, to anyone who cares to tackle it, is to keep your eyes open a bit longer than you think you can stand. If for only one day this month, enter the world of childhood cancer. Become aware.

Donna's Cancer Story: Proton, Here We Come

Sheila Quirke | Posted 11.24.2012 | Parents
Sheila Quirke

Most of the other guests at Jill's House were older men receiving proton for their prostate cancer. These folks quickly became like extra grandparents to Donna and Mary Tyler Son. There was always a set of arms wanting to hold and moon over the baby. It was a Brigadoon in Cancerville.

Donna's Cancer Story: Surgery 4.0

Sheila Quirke | Posted 11.23.2012 | Parents
Sheila Quirke

"Donna, I've noticed a lot lately that you don't always listen to me. I have to repeat myself and it's frustrating." Her response, quick as a whip, was, "You know, Mama, I want to go to the park every day and sometimes it rains." Suck it up, Mom, I'm 3, was the subtext. God, I love that girl.

Donna's Cancer Story: It's a Boy!

Sheila Quirke | Posted 11.22.2012 | Parents
Sheila Quirke

Donna developed a fever and we were told to bring her in to the ER. It was 3 a.m. on Christmas Eve and there was a blizzard happening. Poor Mary Tyler Dad was out in the alley trying to push the car and I was inches from delivery and trying to steer the car with my big belly in the way.

Donna's Cancer Story: The North Pole

Sheila Quirke | Posted 11.21.2012 | Parents
Sheila Quirke

As we exited the plane, rows of Chicago firefighters and police officers gave the kids standing ovations. I lost it -- tears, sniffles, undisguised emotion. Something about these men and women who put their lives on the line daily saluting these sick kids really moved me.

Donna's Cancer Story: Chemo 2.0

Sheila Quirke | Posted 11.20.2012 | Parents
Sheila Quirke

After a checkup to ensure Donna's brain wasn't swelling from the drugs, our oncologist asked her, "How is it that you are as sweet as you are?" Donna considered that question a moment, turned to look at me, and responded: "Because I love my Mommy and Daddy so much."

Donna's Cancer Story: Relapse 3.0

Sheila Quirke | Posted 11.19.2012 | Parents
Sheila Quirke

How to reconcile the girl in our photos, our beautiful Donna, with the photos the doctors order, those inside her body? How, as a parent, do you make sense of what you see in front of you and what the doctors tell you is happening?

Donna's Cancer Story: Dance Class

Sheila Quirke | Posted 11.18.2012 | Parents
Sheila Quirke

Getting Donna into dance was one of the ways we chose hope, the mantra that had guided our Cancer Parenting since diagnosis. Choosing hope meant believing that Donna would enjoy her classes, make it to the recital, shine on a stage like the star she was, and live.

Donna's Cancer Story: Surgery 3.0

Sheila Quirke | Posted 11.17.2012 | Parents
Sheila Quirke

"Watching your child undergo major surgery is like labor. You forget how bad it was the last time around in order to do it again, as needed."