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Diffuse Intrinsic Pontine Glioma

What to Say (and Not Say) to Parents of a Terminally Ill Child

Stephanie Hepburn | Posted 11.02.2015 | Impact
Stephanie Hepburn

Supporting a family who has a child with a serious illness is not a one-size-fits-all type of situation. We all cope with these challenges differently, says Jenny, so it's important to take cues from the family on how they would like people to help and be involved.

Not Your Average Facebook Posts: Creating Communities and Inspiring Action

Jenny Mosier | Posted 10.06.2015 | Parents
Jenny Mosier

I sit on a train destined for New York for the sole purpose of seeing a couple I have never met. Their home is across the world. I am not certain what they do for a living, how they met, what they do for fun, or what type of food they like. Yet, I am confident that I know their innermost thoughts and that we have more in common in how we confront our daily lives than many people I have known for decades.

Profound Conversations With My 5-Year-Old Baby Girl

Suman Ganesh | Posted 04.16.2014 | Parents
Suman Ganesh

New memories will take the place of old ones and the old ones will tend to fade. So writing has become very important for me. If it's all written down somewhere with all the nitty-gritty details, I know I can read it for years to come and know that her memories are intact.

The Lessons We Learned From My Daughter's Unbearably Short Life

Parenting.com | Posted 06.29.2013 | Parents
Parenting.com

In the days left, we would live life in the way that Maddie loved. We would enjoy our time, and use our "forever" to miss her. She was here now and needed her little sisters, Amelia and Lucy, her family, her friends and lots of fun.