If I were to describe myself in person first language, I would say, "Byran, a young man with Cerebral Palsy" rather than, "Cerebral Palsy victim, Bryan." Another important brief example is to use the phrase "wheelchair user" instead of "wheelchair-bound." I am not bound to anything, nor do I suffer from.
While there's still plenty of room for things like sensitivity toward parents who are disabled, and more information needing to be disseminated to professionals that come into contact with parents who have a disability, I can say that I've seen some small strides being made. It's possible, with a few modifications, to be an active parent in your child's life, and not sit on the sidelines.
Do what you can to learn more about disability-related issues and help start some discourse about disability equality, and then share that with other people. Disability is not just physical. There are plenty of hidden disabilities related to learning or emotion as well. Help stop stigmas and stereotypes.