For most parents, the holidays are a time filled with family, friends and happiness. While this is also true for mothers like us who have children with extreme medical needs, we have a special holiday wish -- that our children could experience and celebrate the season without debilitating pain for just one day.
Butterflies are everywhere. Some of us wear them subtly on charms around our necks or dangling from our ears. Others wear t-shirts or sunglasses emblazoned with them. And then there are those who wear their butterflies more permanently, tattooing their skin with these winged creatures. No, we are not lepidopterists (scientists who study butterflies) or even butterfly enthusiasts. We are mothers -- mothers who have come together from around the country with a shared experience -- we have children whose skin is as fragile as a butterfly's wings.