I have a neuromuscular autoimmune disease called myasthenia gravis. Like other friends of mine with MG, lupus, multiple sclerosis, and other illnesses, I have to weigh the joys of being with loved ones against the risks of getting a cold or the flu, which can lead to relapses, hospitalization, and weeks (or months) bedridden.
My patient and I were walking down the tiled floors of the hospital ward, past the other patients' rooms, every door flung open like in a college dormitory but none of the rooms very inviting. We were almost around the bend by the elevator when he looked up at me and said: "You know something? Every man in my family has died at the age of 53."
Of the more than 2.3 million people worldwide who are diagnosed with multiple sclerosis, I am only one story. I am a wife, mother, daughter, daughter-in-law, sister, friend, and woman living with an incurable and unpredictable disease. And even though I am only one person, my story can add great value by educating othe