I wish we'd never known each other. I wish this was a journey you'd never had to embark on. I'm still new to this journey. We've only been on it for four months. I just want you to know you are strong.
Medically, the first hospital did everything right. I am grateful for that. The surgeon who removed my son's tumor was one of the best pediatric neurosurgeons in the U.S. The nurses on the oncology floor did their job well. But I was miserable.
've learned a lot about life and humanity from working as a nurse practitioner in pediatric oncology. Some of those lessons have undoubtedly made me a better person than who I was before I learned them. They shifted my perspective. They gave me insight I never would have had.
Little Sam was born and I hardly had time to breathe, or sleep, or eat, let alone take walks. I hired a babysitter a couple of hours a week, and when I didn't use the time to collapse on my bed, I scrounged up the leashes.
Just as children are not miniature adults, pediatric cancers aren't small adult cancers. The distinct biology of pediatric brain cancer means it often needs different treatment and can also give us insights into the origins and cures to all cancers
You never stop thinking you are a family of five. You never stop answering that you have three kids, or two daughters. It never stops feeling like something is missing, because something always will be.
He wants to chat with her about baldness the way he would otherwise chat with a friend about Legos. Baldness is familiar to him. If she had a visible scar, he would probably happily lift up his shirt to show the one that stretches across his abdomen.
At times, I think I was born the day Jackson was diagnosed. The world falls silent as cancer shuts out all the background noise of work stress, mortgages, that extra 10 pounds or what's on TV. It awakens a level of empathy to suffering and an awareness to what's truly important in life.