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Spinal Muscular Atrophy

This Is Not The Way I Planned It...

Heather C. Miller | Posted 09.01.2016 | Impact
Heather C. Miller

It’s always been me and my brother, Justin. Either us against the world, or as kids, us against each other.We’re only 11 months apart in age and I...

My Child's Terminal Illness Was a Gift

Victoria Strong | Posted 05.22.2016 | Parents
Victoria Strong

We had to muster up the courage to live life with fear and grief as a constant companion because our child deserved a life that was defined by the joy in it, not the number of years.

Band Student With Spinal Muscular Atrophy Plays iPad Drums Like A Boss

The Huffington Post | Elyse Wanshel | Posted 05.09.2016 | Good News

One teen in Swanville, Minnesota, marches to the beat of his own drum. Ethan Och, 18, plays drums for his school band, pep band and marching band desp...

When Your Sibling Has Special Needs, Your Needs Are Special Too

Heather C. Miller | Posted 04.01.2016 | Parents
Heather C. Miller

I know not everyone's story is the same. Some siblings may have better coping skills to deal with the ups and downs. Some people are naturally good at looking at the bright side, while others need some help finding the light... and that's OK too.

A Letter to Apple: You've Given My Brother Life

Heather C. Miller | Posted 03.31.2016 | Impact
Heather C. Miller

God gave him a body that doesn't quite work. A body that tries to fail him over and over again. Throughout every medical leave and hospital stay, Apple sticks by him. Anytime his health declines, he always has the same goal in mind; to get back to work at Apple.

A Service Dog is a 'Wish' Come True

Alyssa Silva | Posted 10.23.2015 | Good News
Alyssa Silva

Service dogs quickly become an extension of ourselves, and I felt that instant connection when we first met. As I took a breath of relief, I remember Jennifer looked at me and said, "I promise you're going to love her. Her name is Wish, and she's an absolute sweetheart."

Mom Writes Viral Note To Boy Who Saw Her Son With Disability Like Any Other Kid

The Huffington Post | Kimberly Yam | Posted 08.19.2015 | Good News

One mother was deeply moved when she witnessed a boy's interaction with her young son. When Katie Myers' son, Kaden, was 7 months old, he was diagnos...

Gwendolyn Strong: In Memory, and Challenge

Don C. Reed | Posted 07.25.2016 | Science
Don C. Reed

My son Roman never cries. He is paralyzed, but he has the heart of a lion. So when he called tonight, just moments ago, sobbing uncontrollably, I could not recognize the voice.

Eleanor Goldberg

Artist Shirks Fame To Invent Tools That Allow Kids With Disabilities To Paint | Eleanor Goldberg | Posted 07.21.2015 | Impact

When Madison was first diagnosed with spinal muscular atrophy, her doctor didn’t know a whole lot about the genetic condition. She flat-out told Mad...

Toddlers With Muscle Disease Get Tiny Wheelchairs So They Can 'Just Be One Of The Kids'

The Huffington Post | Cameron Keady | Posted 04.14.2015 | Good News

A group of college students have created a custom-sized, zippy new wheelchair for two kids who are unable to walk or crawl -- and it’s one sweet rid...

Why I Choose Resiliency

Alyssa Silva | Posted 05.17.2015 | Women
Alyssa Silva

My disability is not meant to be understood as something that limits me. In fact, I can confidently say that I believe my abilities far exceed my disabilities every single day of my life. The obstacles brought upon by this disease serve as lessons which can only be discovered in the resiliency I have to overcome them.

Curiosity Never Killed the Cat

Alyssa Silva | Posted 01.31.2015 | Impact
Alyssa Silva

Let's begin by pointing out the obvious. I'm different and look different, in which case I find it completely normal that a child gets curious. In fact, I believe their curiosity is a great thing because without being curious and never asking, they'll never know.

11 Reasons Why Being In a Wheelchair Is Awesome

Alyssa Silva | Posted 07.23.2014 | Impact
Alyssa Silva

At the end of the day, this life is more than I deserve, so with a little humor, I'm here to set the record straight. Being in a wheelchair isn't so bad after all, and I've compiled a list that proves just that!

This Man's Home Has Essentially Turned Into A Private Concert Venue -- And He LOVES It

Posted 04.03.2014 | Good News

Musicians have been flocking to Nick Stanley's living room in Farmington, Maine, to play private concerts for the young man who cannot leave his bed. ...

Defining Your Inner Strength

Alyssa Silva | Posted 02.10.2014 | Healthy Living
Alyssa Silva

Strength is having hope where hope was once lost and holding onto faith even through the darkest of times. It's about finding the strength to move forward and leave your past behind, but never forgetting how you got to where you are in this moment in time.

My 6-Year-Old Teacher

Vanessa Contopulos | Posted 01.23.2014 | Impact
Vanessa Contopulos

From the beginning of our time together, Isabel moved my heart deeply. Without spoken language, she communicated through her eyes, the slight lifting of the corner of her mouth to form a little smile, and with movements of her tiny fingers.

Disabled in Disney

Alyssa Silva | Posted 11.27.2013 | Impact
Alyssa Silva

On Monday, Disney announced that they would be changing their theme park policy for guests who have disabilities.

A Night Spent With the New England Patriots

Alyssa Silva | Posted 11.03.2013 | Sports
Alyssa Silva

For the past few years, I have always wanted to attend a Patriots game at Gillette Stadium. Being from New England, I had attended the Bruins, Celtics, and Red Sox games, but had yet to cross the Patriots off my bucket list.

Hope Lights the Way in Providence, RI

Alyssa Silva | Posted 10.08.2013 | Impact
Alyssa Silva

Ever since I was a little girl, I've always been extremely passionate about raising awareness and funds for my disease, Spinal Muscular Atrophy. It started off with lemonade stands in the neighborhood with my friends, where I would dream about raising $100 for my cause.

Dare to Be Remarkable

Alyssa Silva | Posted 07.23.2013 | Impact
Alyssa Silva

I learned at a very young age that life is a precious gift, and living in a life of fear will only hold me back from chasing my dreams. This is the life I've been given, and I can promise you I'm always going to make the most of it.

WATCH: Inspiring Woman Living with Spinal Muscular Atrophy

HooplaHa | Posted 07.20.2013 | Healthy Living

When Alyssa was just 5 months old, she was diagnosed with a genetic disease called Spinal Muscular Atrophy (SMA). The doctors told her family that she...

WATCH: Man's Ability To Laugh At Terminal Illness Will Make You Smile

Posted 04.15.2013 | Good News

A young man who suffers from a degenerative disease has made laughter his medicine of choice, and he's inviting the world to laugh with him. Shane...

For My Brother

Alyssa Silva | Posted 05.25.2013 | Good News
Alyssa Silva

One September afternoon, I was receiving an albuterol treatment to keep my lungs expanded and free from infection. Suddenly, there was a knock at our door: It was a police officer to tell my mom Adam had been hit by a truck while riding his bike.

Disabled Teen Hockey Player Raises $100,000 For Research | Posted 12.12.2012 | Impact

Steven Potter ticks off the big things on his mind and they sound typical of any 15-year-old. He wants his license, he’s itching to get to college, ...

Watching Avery's Story, Thinking Of My Son

Linda Wachtel | Posted 07.01.2012 | Parents
Linda Wachtel

We are a family shaped by Jordan. We honor that by remembering him, by telling his story. And, like Avery's family, we also remember that we are part of a community of families.