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Randi Hutter Epstein, MD, MPH

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How to Survive a Chemotherapy Haircut

Posted: 07/20/2012 11:00 am

When my friend Ellen recovered her appetite after her first round of chemotherapy, we indulged in a really decadent lunch. We decided we would eat our way through her ovarian cancer, splurging during the breaks in between chemo sessions when she was feeling good enough to enjoy a meal. We ate and talked kids, careers, books and movies. We didn't avoid the cancer talk, but we didn't dwell on it, either.

The other day on the way to the dry cleaners, I ran into Ellen and she asked me to join her that afternoon for her head shave and wig fitting. How could I refuse?

And yet, I worried that I'd sob the whole time and not be the support system she needed. Watching my friend have her hair removed would make it all feel too real -- and I wasn't ready to leave the land of denial.

We met outside her apartment at noon. All morning, I had tried to image what a hair stylist majoring in chemotherapy cuts and cancer wigs would be like -- particularly one on the tony upper east side of Manhattan. Ellen's aunt was paying for her to get a top-of-the-line wig.

I imagined the salon would be spacious and adorned in shades of white and pink: White for sanitary/medical reasons; pink for femininity. Then I visualized the hair-cutters. I pictured either (a) an overly perky and saccharine-sweet woman chattering away in cheerleader diction to distract my friend from the whole cancer theme (yuck!) or (b) am overly soothing and sympathetic woman with a yoga teacher voice, trying to let my friend make peace with all the bad stuff going on (equally yuck).

What we got was anything but. We entered a drab apartment on the first floor of a narrow walk-up -- I'm talking no décor whatsoever. Pine cabinets stood behind tables loaded with wig upon wig, each one fitted on a head-shaped form. There were wigs on the table and wigs on the bookshelves and rows of wig shampoo in the cabinet above the kitchen sink.

We were greeted immediately by the beautician. Again, he was nothing like I expected: Think Catskill comedian meets Italian Jersey shore. He said "Fahgettaboutit" and "you-know-what-I'm-saying?" more often than someone doing a bad impression of how often New Yorkers say "Fagettabout" and "you-know-what-I'm-saying?" He bellowed and put his face really close to ours when he spoke.

In the old days, he said, when he was doing wigs "for like regular, crazy people," the hairdressers really looked down on the wigmakers. "I mean it's like putting a gay in the same room as Rick Santorum. Fahgettaboutit. You know what I'm saying?"

"Rita," he hollered, "you can buzz her."

His utter lack of sympathetic clichés made him all the more caring. He was loud and blunt and matter-of-fact -- and somehow that made the whole process a lot easier to digest.

Ellen winced when he started to cut her already short hair and said she didn't expect so much scalp pain. It hurt putting her head on a pillow, something her doctors never warned her about. That's typical the first few days after chemo, her stylist said. He ought to know. After all, he's been dealing with cancer patients for decades.

But not to worry, he added, "Yeah, I think once your body gets used to, the uh, you know the tingling sensation, it's like putting up with a toothache. After a couple days, you don't even remember what it feels like not to have it."

Well, that's reassuring.

"When do you go for the next chemo?," he asked.

"Tuesday," said Ellen.

"So you'll feel really sick on Friday. It's mathematical."

He spoke as if Ellen's future was as predictable and straightforward as addition and subtraction.

I asked why he had a mirror in front of the chair. Did clients really want to watch as he buzzes? He said he swings the chair backwards for a lot of women but he could tell Ellen was "well adjusted. You know what I'm saying?"

He doesn't even have a barber chair, just a regular wooden desk chair with a swivel that makes him lean over so much it must hurt his back. Did he ever think of getting the chair that most hairdressers have that go up and down?

"Too Luciano," he said.

The appointment lasted probably twice as long as it needed to be because he told so many stories. We heard about his visits to clients in their fancy apartments. (Of course, like any experienced and uber-verbal hair stylist, he knows how to gab without revealing a client's identity.) Another woman, he said, has trouble adjusting her wig. "And she went to Harvard. You know what I'm saying?"

"You know why she can't adjust her wig?" he asked us (or really just asked himself as a way to lead into the next tale). "Because she can't cook. They order in all the time. If you can't cook, you can't fiddle with a wig. I don't know an Italian man who would stand for that. My kids expect my wife to cook a three or four-course meal every night. You know what I'm saying? Faghettagboutit."

Ellen added that she's worried about getting the wig on right and she's a Harvard grad, too. But he wasn't listening to us. He was busy with his own stories.

Then he pulled out her wig -- a gorgeous, long, reddish piece with wispy front layers. He put it on but said he would need an hour, at least, to cut it down and fix the front. He suggested we go for lunch.

Before we left, I took a snapshot of Ellen with her pre-styled luscious red hairdo and e-mailed the pictures to her boyfriend and relatives. She looked fabulous. Thanks to her wigmaker, I didn't cry at all. Then, as usual, we went for another fancy lunch -- one of many more to come.

(If you have had a similar or not-so-similar time with a wig-fitting or head shave, please share your experience. join the conversation at http://randihutterepstein.com)

 

Follow Randi Hutter Epstein, MD, MPH on Twitter: www.twitter.com/randihepstein

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When my friend Ellen recovered her appetite after her first round of chemotherapy, we indulged in a really decadent lunch. We decided we would eat our way through her ovarian cancer, splurging during ...
When my friend Ellen recovered her appetite after her first round of chemotherapy, we indulged in a really decadent lunch. We decided we would eat our way through her ovarian cancer, splurging during ...
 
 
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10:52 PM on 07/23/2012
My friend, Karin had a wildly aggressive form of breast cancer. From the time she was diagnosed to death, it was a mere 11 months. I cut her hair when it started to fall out. I brought her chocolate every time I saw her and listened to the last death dialog for about 8 hours one Saturday. She was the only person that truly shaped my future and if she wanted to eat junk food (which she did not) I would have gladly given it to her.
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Grinnifer
Gun toting tree hugger
07:56 PM on 07/23/2012
The thing that freaks me out about this article is the decadent lunches. I have seen both my mother and best friend through cancer. I can tell you there are quite a few food items to be avoided and most of them are decadent. Sugar, red meat and dairy, to name a few, feed the cancer. Most doctors don't discuss diet with their cancer patients, we had to learn all of this on our own. Please think before "treating" a cancer patient to a decadent lunch!
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10:46 PM on 07/23/2012
Right, that's it...
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02:49 AM on 07/23/2012
I donated my long-at-the-time hair to a charity during a cancer walk. My Mom knew the people running it, so she knew it was legit, unlike the other service I tried who wanted to charge me a fortune for a fancy haircut on top of it. As a disclaimer, they were also admitting not all of the hair went to cancer patient wigs, some of it gets sold for "administrative costs". That bugged me. It went to a little girl I'll never meet, but I would have been fine giving it to anyone if they were in need and suffering from anything like this. So many people I know have had cancer, guess it just felt nice to give back in a way I know helped someone. I would urge any of you to do the same.

I wonder if the author trimmed her hair in solidarity, donating the excess to the wig guy if he turns the stuff he's shaving off into new wigs.
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12:05 AM on 07/22/2012
Wow
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DRaymond
Network administrator, voiceovers
10:50 PM on 07/21/2012
My wife went several months of chemo before her hair started falling out.  She really didn't need a shave because it left all on its own.  We talked about wigs, and the insurance would have covered it, but with the warm weather in Southern California she decided to just go with hats and scarves.  For a few weeks her clothes budget went all for hats and soon she had a bunch of basic hats that she swaps around various bands and ornaments to coordinate her outfit.

It was a much better choice for her because unlike a wig it allows her to be creative and her friends can complement her on it.  It would seem much less likely to have them say 'wow, your wig looks so cute today' but they say all sorts of nice things about her hats.  It is an easy way for them to be supportive.
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barriosbabe
10:43 AM on 07/21/2012
The heart of cancer is courage. I can only speak for myself but as a cancer survivor I'm here to tell you that these "wig" stories and so forth are really lightweight pieces that play off the fear mongering of "oh no who has cancer now." The heart and soul of cancer is courage: who holds your hand? Who goes with you to treatment? Who visits you three years later when 2/3rds of your friends are burnt out on the marathon? Which people bother to take time off of work or school and just come stay with you and help? I didn't do it decades ago when people needed me because I was too afraid of cancer, death, the gore, the breaking hearts ...... but that is where you really find out who has got the cajones. Please, more stories about that and less about the "wigs." Oh, if only I could go back and know what was really important. Oh, if I could only thank those half a dozen people who had the balls to face the hardest times with me. When are we going to get the word out about that? And for everyone of you that posts back "I did that!" I can introduce you to a dozen cancer patients that have nobody to stay with them, nobody to help them, nobody with the balls to see them through. Be that person. Now.
10:25 PM on 07/21/2012
I guess I was very lucky! Although I had a husband who ran for the hills, I had so much support from so many others, who were with me every step of the way, I felt very blessed! I agree it is a time you find out who is and isn't really able to "truly"be there" for another ...
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SeeTheFnords
Look out - there's one behind you!
11:45 PM on 07/23/2012
Yes, yes, a thousand times yes!

Sadly, some people just don't know how to offer to help someone. They are intimidated by their lack of knowledge, or their own emotional reaction to the situation. Don't be afraid to ask - there is no such thing as a dumb question, except the one not asked.

Glad you are a survivor, and very glad that you posted this. f&f!
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oldschoollib
Live from the Heartland
06:24 AM on 07/21/2012
Your friend Ellen is so blessed to have you as part of her support system.