The medicalization of eating disorders -- that is, the push to find the genes that trigger them -- has offered solace to many sufferers. It's got to be easier to consider anorexia and bulimia more like, say, an autoimmune illness linked to an inherited vulnerability than than a reflection of family trauma or your own insecurities.
Unfortunately, at this point, the hunt for the illusive eating-disorder gene is just that. Illusive. Perhaps one day, doctors will be able to tailor treatments to fix genes that prompt self-destructive behavior. For now, without any quick fix, the best solution may in some ways hark back to something a bit old-fashioned: looking at the home environment and exploring your and your child's emotional issues around food, control and power.
This is one of the messages in Judy Scheel's informative and compassionate new book, When Food is Family. She is, in some ways, turning the clock back to the days when we used to psychoanalyze those who suffered from anorexia or bulimia. But there's a modern twist: cognitive behavior therapy.
And while most experts are already using cognitive behavior therapy -- practical steps to help patients develop healthier methods of coping -- many shun the psychoanalytic part. Scheel believes that the best way to get to the root of the problem is to explore past and current family issues, the things that may have prompted the disordered eating in the first place. Then she couples the self-exploration with strategies to move forward.
"The nurture and the environmental piece play a huge role," Scheel said. "We haven't found the gene and while people are hungry to find it, I that raises a lot of flags that we are looking to medicalize something. We have to get back to what we did in the 70s and 80s, looking at eating disorders as a psychological disorder. They don't fall from the sky. The nurture piece and the environmental piece play a huge role."
As difficult as it is, Scheel, who has been treating children with eating disorders for 25 years, says parents need to explore the family dynamics or the damaging messages they may be feeding their children. She worries that the excitement about the genetic basis for illness has pushed the pendulum so far away from the crucial environmental factors. We no longer examine what is going on at home, she says, partly because no one wants to blame a parent. And yet, part of the reason for a child's self-destructive behavior may have to do with parenting. Sometimes we do have to confront our own child-rearing foibles to help our children overcome their own issues. (And sometimes their issues are our issues as well.)
When Food is Family contains anecdotes about parents who are so controlling that children feel the need to restrict food as a way to assert their own independence, about families that are so emotionally starved that children fill an emotional void with food. None of these analyses are brand new, but the coping techniques she outlines offer a framework for families who may be coping with a child who is starving or purging or both.
As Dr. Katherine Zerbe, a professor of psychiatry at the Oregon Psychoanalytic Center, commented in the preface of the book, Dr. Scheel offers therapeutic exercises that can provide hope to both the parents and the patient. The downside is that the process takes a lot of painful soul-searching and a brutally honest appraisal of the emotional underpinnings within the family. But the upside -- an enormous upside -- is that families who are willing to go through the process not only help their children recover but find new and deeper ties among themselves. As anyone who has dealt with these disorders knows, there is no quick fix.
One of her main thrusts is finding an emotional voice, rather than an emotional behavior. She even provides a vocabulary list to help teens and their parents express themselves more clearly. There are categories, such as "happy," that includes words such as "overjoyed," "high-spirited" and "hilarious." The category "afraid" includes "mistrustful," "wary," "uncomfortable."
And while this may sound silly, simply telling people to communicate may not be the best medicine. Providing them with words is truly helping the dialogue. She believes that for some teens unable to express themselves verbally, they prove their point by withholding food.
Also, she examines the mothers who may have their own issues around food. Like it or not, our children learn by modeling our behavior. Girls with eating disorders are highly likely to have mothers who fear food, too. Genetics? Maybe. Or perhaps your daughter has picked up your message that being a few pounds overweight is dreadful. If you skip meals or hide your food, you are sending a message that it's normal behavior. As difficult as it may be, mothers with eating disorders may have to confront their own issues if they truly want to help their children develop healthy attitudes about body image.
"I think we have gotten too far away from the psychological approach. Parents today want a sound bite, a solution that will take no more than, say, four months," said Dr. Sheele. She believes that those who suffer can reach a full recovery in terms of symptoms, but may have a lifelong struggle in terms of an inner voice driving them back to self-destructive behaviors. The key, as she writes, is not about a cure but learning to recognize your own or your child's vulnerabilities and act on them before they spiral into dangerous habits all over again.
Follow Randi Hutter Epstein, MD, MPH on Twitter: www.twitter.com/randihepstein
I realize that it is threatening to the field to think that parents can know as much about their children as seasoned clinicians, and that the sacred cows many have built their careers on are being questioned. However, FBT is proving its efficacy, over and over - it would behoove Dr. Scheel, if she truly wants to help families, to get formal training in this modality before judging it less effective than her own. She may be surprised by the results. However, regardless, my real issue is not actually with Dr. Scheel's book - that's for a different day - but with the stance taken here by Dr. Epstein that Dr. Scheel's approach reflects necessary work for families that is just hard and honest, while other approaches parents adopt somehow are easier. While I am sure Dr. Scheel motivates parents to do hard work, so do other approaches, and to imply otherwise is silly and reductionistic, and does not elevate Dr. Scheel's work but instead makes it challenging to take seriously.
I wonder if anyone who hasn't been in this situation can see how this might make a parent anxious and lead the psychologist to think that the parents are the problem, whereas it's actually the psychologist!!! Like a movie where a person wakes up in a mental hospital and can't convince anyone that they are normal!
In FBT and I was treated as a responsible adult who would be in charge of the feeding. It made all the difference in the world! How do I feel now? I feel very competent as a parent. I was never forced to reflect on any parenting mistakes I might have made. I did learn how to take care of my daughter while she was sick, it wasn't intuitive at all to have to get a teenager to eat. I did have to learn HOW to stay calm in the midst of her storms. But that's over now and our relationship is very good and remarkably like it was before she got sick.
There are many knowledgeable and compassionate people here who have commented, who have studied much of what has been written or promulgated or researched in this field, who have lived with an eating disorder at close quarter and who have used compassion and knowledge in so doing, who have read the book even, and you have attempted to disparage them with umbrella terms like "reductionist", "simplified", "agressive", "polarizing" - I would take that beam out of your eye first before committing poison virtual pen to virtual paper again from behind that cloak of anonymity that your choice of moniker gives you.
This is a comments section and surely others are entitled to an opinion; I personally find your attempts to besmirch these others from your chosen vantage point of professional specialisation in the field, for whatever that is worth, unworthy of this debate and your professionalism. I would bear in mind that they may have good cause by now to be mistrustful of many who profess to be specialists in this particular field; I only wish that we could expect more.
One more point I’d like to address: Most sufferers deep in the grips of an ed are UNABLE to be independent and healthy simultaneously, and parents willing to be in charge of their food for a time is their only hope- that does NOT mean the parents are “controlling”- it means that they care. Encouraging “independence” in a person acting irrationally is a dangerous thing indeed. Parents need to be empowered in their child’s treatment. Telling parents that their child is trying to assert his/her independence through food restriction- will do the opposite of empowerment.
I see in comments below that the author you have quoted has a more rounded approach to eds than what your article implies. I would ask that you reconsider the tone of your article, and give thought to the numerous kind, loving parents who are dedicating endless hours and energy to the scientifically based idea that food is medicine, and that, first and foremost, their child needs to become physically strong and healthy again.
There is no point spending years in psychoanalysis of the home environment and dynamics while the child is starving to death. A dead child is not an enlightened child. And a bereaved parent is not an enlightened parent.
Eds kill. Food first- focus on giving parents the power to help feed their child. Self-exploration of the sufferer should happen later.
3."The downside is that the process takes a lot of painful soul-searching and a brutally honest appraisal of the emotional underpinnings within the family. But the upside -- an enormous upside -- is that families who are willing to go through the process not only help their children recover but find new and deeper ties among themselves." coupled with this book quote: ' "I think we have gotten too far away from the psychological approach. Parents today want a sound bite, a solution that will take no more than, say, four months," ' These quotes imply that the REAL work happens only when parents do things in the manner YOU suggest, and that parents who choose a scientific approach instead are looking for a quick fix- that they have less concern for their children- and less desire to get in the trenches and get down and dirty and do whatever it takes to help their child heal. But stories I have read of parents who saw their child’s ed as a disease and took it on toe-to-toe as such sound more like war heroes than like lazy, half-concerned people looking for a quick fix. They put their own lives on hold and they take the ed on with determined ferocity- giving up their social lives, their vacation time, whatever it takes- to help make their child physically healthy again.
1. "It's got to be easier to consider anorexia and bulimia more like, say, an autoimmune illness linked to an inherited vulnerability than than a reflection of family trauma or your own insecurities." This implies that people who take a scientific approach to their own or their child’s ed are looking for the “easy” path- that they are lazy/wanting a quick fix. This implication is unjust and unwarranted.
2. "When Food is Family contains anecdotes about parents who are so controlling that children feel the need to restrict food as a way to assert their own independence, about families that are so emotionally starved that children fill an emotional void with food." This implies that families are to blame for eds in children, which will contribute to parent disempowerment- parents scared of being accused of “causing” their child’s ed may become too frightened to step forward and ask for help for their child. In addition, there has been extensive research proving that family dynamics are NOT to blame for eds, and that parents taking charge of their child’s illness (i.e. Maudsley) is by far the most successful treatment approach.
Randomized clinical trials show that the best results over time for anorexia are demonstrated by Family-Based Treatment: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3038846/?tool=pmcentrez. I have not been able to find any RCTs demonstrating the efficacy of Ms. Scheel’s therapy for treatment of EDs.
There is no proof that parental behavior causes or contributes to manifestation of EDs or any other major psychiatric disorder. In the past, professionals blamed mothers for autism and schizophrenia and were proven wrong. Most people with EDs have siblings who don’t. Most people who have had the types of situations mentioned in the article never manifest EDs. I recommend http://www.feast-ed.org/, Families Empowered and Supporting Treatment of EDs, for info about EDs and treatments.
I suggest you spend some time after a deep breath and go to the library. Get the book for free. BUT READ THE BOOK.
Her bibliography contains five (5) references. Four of them are irrelevant to the book (exercise addiction, TV and body dissatisfaction, etc). Four of them are over 12 years old. Honestly, I would expect the average high school term paper to be better researched.
It's impossible to say that parents are not blamed with chapters like, oh, let me just randomly open the book: "Accepting your part in the problem," "Eating disorders develop when there is no room for negative emotions," "Criticism: Moving beyond judgment and blame," "Responsibility: Owning your mistakes"...need I go on?
Her book is deeply offensive to me as a parent. There's a lot of good advice for being a good parent. The problem is that the author assumes that you have not been a good parent (that's called BLAME); the proof of that is that your child is ill. It's Cuckoo's Nest!
I'm sad about girls like Melissa, and I am determined to help parents find good help before their own children die. This book will not help. Try "Help Your Teenager Beat an Eating Disorder" if you want a book that actually helps. Check out www.maudsleyparents.org and www.feast-ed.org. There you will find information that actually is evidence-based and well-researched--which will help sufferers recover and truly support parents without blame.
Early in my recovery, I read a book called "Rational Recovery". It had much "research" behind it. The Big Book, on the other hand, has been attacked since 1934 for it's lack of scientific bonafides. I can only say that had I followed the advice of the former rather than the latter, I would be incapable of response today.
Can you clear something up for me, please?
"Recovery is integration of mind and body and finding ways to live life authentically, experientially, relationally and with self care - without the need to engage in self-destructive and self-defeating acts."
Are you implying that the self-destructive and self-defeating acts are a concious decision on behalf of the sufferer?
When you describe recovery as "rational", are you implying that an eating disorder is an irrational act? If so, precisely in which sense are you using the word irrational? Are you talking about the difference between what is in a person's interests and what they perceive to be in their interest? Flawed reasoning? Unconciously made decisions? Something else?
I find it interesting that you appear to view eating disorders as a question of choice (whether concious or unconcious). If this is not so, please could you clear this up for me?
I haven't read the book. I have read the review and I am assuming the reviewer has read the book. The impression you give in the paragraph above is NOT the impression the reviewer gives. I have also studied your work and I do understand that your heart is in the right place and that you have great empathy with eating disorder sufferers - hey, no one's in this field for money!
However, I do feel that this book does emphasise too much the stereotypical view of the family - monstrous mothers who diet and call their over anxious children fat, with a distant father looming menacingly in the background. I am afraid I have little time for psychoanalyists - they were the people who invented "packing" as a cure for autism - sigh - and do so want the world to move on to understand that we parents of children with eating disorders are not the dementors many perceive us to be.
Perhaps whatever you meant to say came out wrong? Because the paragraph above sounds nothing like the review. Perhaps it would have been kinder to sufferers and parents alike to include the biological, genetic and the evidence based stuff so people could have a clearer understanding of what an eating disorder actually is composed of?
Have you read David Wood's introduction to "Eating Disorders and the Brain" by Lask, Nunn and Frampton? Perhaps you would like to include that in your next print run?
Additionally, she does not say that there is no evidence or validity to the possibility of genetic determinants in the development of eating disorders. Rather, as people wanting to help those afflicted with this horrific disorder, we need to realistically view this disorder as a multi-faceted disease, caused by many factors. Along those lines, she stresses we need to not overemphasize the medicalization of eating disorders and misunderstand the complexities if the illness.
Just to turn things on their head. If you ignore the medical aspects of the illness, in order to "understand" it better, patients die. Just sayin....
Eating disorders are not caused by dysfunctional families, control issues or mothers with their own food issues. We're quite happy to accept that the stress of caring for a child with cancer might make parents appear dysfunctional so why can we accept that parents caring with a disease that is more lethal than some forms of childhood cancer might also be stressed and not operating at their best.
Science has shown that psychoanalytically based methods do not help those with eating disorders (or in fact most other conditions). Treatments based on these methods cure around one third of people, taking on average seven years and with up to 20% of patients dying in the process. What does work is the Maudsley method for anorexia nervosa, and bulimia in adolescents and young adults and CBT (often combined with medication) for older patients with bulimia or binge eating disorder. 70-90% of people fully recover by these methods taking on average one year. Feast-ed.org is a great source for further information.
To the editors: eating disorders are poorly understood by both the public and many treatment providers. Please show some social responsibility by researching what you publish and not further spreading information that hurts those in desperate need of help.