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Christiane Wells: What It's Like Being Bipolar

Posted: 04/15/11 11:12 AM ET

2011-04-15-picture39814.JPGBy Christiane Wells

I had no idea how serious the diagnosis of bipolar disorder was at 19-years-old. To have a bottle of lithium in my hands felt scary. But it explained why I'd had such serious issues for years -- impulsivity, depression, suicidal ideation, substance abuse, grandiosity, extreme agitation, and periods of obsessive activity without sleep.

Fighting the diagnosis and hoping for a normal life didn't work out. Instead, I couldn't stay in college because I didn't care, either because I wanted to die or because I felt too brilliant to need a degree. If I wasn't obsessed with how to kill myself, I was writing page after page of my master plan to change the world. There was rarely any balance between mood swings.

Living with bipolar disorder was too difficult, too overwhelming, and when I was committed to the mental hospital at 21 because I couldn't stop thinking about death or smoking crack, I thought my life was over. It was the end. In a state hospital, surrounded by the grim reality of severe mental illness, things didn't look promising.

Euphoric mania was elusive, but I kept trying to induce it. Surely if I could just stay manic I'd have the confidence to pull myself together and accomplish something. Instead it seemed like I couldn't stay out of the hospital. I couldn't stop using drugs, and I wasn't trying because the sober life was too depressing to bear. Within three years of my initial diagnosis I'd seen 10 different psychiatrists and taken at least two dozen different psychiatric medications. Social Security Disability was the logical step, and no one doubted its validity when I got my first check.

Eight years of my life seemed to slide right by in a blur of despair with only moments of promise or hope. What was there to believe in, or hope for, with my constant failures? There were people in my life who kept me hanging on, especially my mom and grandmother, who never gave up hope that I could be well.

Throwing in the towel at 26-years-old, I chose homelessness and crack, and assumed that death, or maybe prison, was imminent. I lived recklessly and dangerously. And slowly it occurred to me that what happened with my life was in my hands. If I was going to have a real life, without drugs or mood swings or hopelessness, it was up to me. Living next to downtown Las Vegas in some of the most wretched places I'd ever experienced, with a much older homeless man, I realized I no longer wanted this life. It was old. My parents were about to move to Los Angeles, and I would move with them and change everything. The day we left Las Vegas was the last day I ever smoked crack.

It wasn't easy to change my life, and it didn't happen overnight. At first it was a series of good decisions, which I hadn't been making consistently at any point in my life. I wouldn't smoke crack anymore, I'd get a job, eventually go back to school, and make some good friends. I bought an outfit to do a job interview in and got myself out to some interviews. I got a job almost immediately in Burbank, and I stuck with it. I'd been clean from crack for a few weeks, and I just kept telling myself I could do this, that I knew how. I'd been in therapy forever, in many rehabs and hospitals, and I knew the basic steps for success. I needed to stay on my medications, find a therapist, not get caught up with drugs, and establish a routine to help me stabilize.

I met my husband at work. Even though I was struggling to keep my job, not drink too much, and not curse out co-workers when they irritated me, he asked me out. I had no idea what he saw in me because my self-esteem was in the basement. I felt less than human at times. Even after I told him my story, upfront, he still wanted to be with me. That was eleven years ago next month, and the other day was our eight-year wedding anniversary. He's my rock--the perfect balance to my craziness. He is responsible, intelligent, caring, and generally amazing. He helped me change my whole life.

Working is very difficult, and despite solid attempts, I'm still on Social Security. But I've completed my bachelor's and master's degrees, and now I'm working on my doctorate. I will write, teach, and conduct research, because that's what I am meant to do. My calling is to help people see that there is hope with bipolar disorder. Life doesn't end with a diagnosis. My life is what I make it.

I will always struggle with my moods. Even on medication, I deal with the symptoms of bipolar disorder, and it's never going to go away. I have worked with an amazing therapist for five years, and he has helped me grow in ways I never imagined possible. The idea of taking bipolar medication until the day I die doesn't bother me anymore. It's okay. As a social worker here in the Denver area, I'm fortunate to know an abundance of people who went to graduate school with me, as well as people I worked with in child welfare, and I meet up with them whenever possible to talk, laugh, and vent. It's my support system of amazing people--including my husband, family and friends, near and far--who help me keep moving forward, always striving for increased wellness.

And it's working. Those of us with mental illness can never give up hope, because no matter how bleak things may seem at times, not one of us is beyond repair.

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Christiane Wells, MSW, is the author of Magical Shrinking: Stumbling Through Bipolar Disorder and No Guarantees: A Young Woman's Struggle to Overcome Drug and Alcohol Addiction. She lives in Highlands Ranch, Colorado, with her husband and son. Read her blog on Red Room.

 

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HUFFPOST COMMUNITY MODERATOR
SophiaFlorere
More funding for pancreatic cancer research please
06:34 AM on 04/23/2011
Christine, what an amazing story. Thanks for writing this. You have amazing courage. I wish you all the best. I trust this article will give hope to thousands.
12:09 AM on 04/20/2011
I have read many comments of people on here that are living with the illness of bipolar disorder. The first thing they say is I am bipolar. You are basically saying you are an illness, instead of being afflicted with one. I know is seems silly to point this out, but some do not realize how words effect our lives and how changing how we say things can make a difference in how we feel. I have never met a person with cancer who says, "I am cancer". Or someone with HIV who says "I am HIV". Or someone with diabetes say, "I am diabetes". I could go on and on, the way you view yourself is so important, If you view yourself as an affliction, then you become one. But if you view yourself as someone with an affliction, then you try to fight. Sounds silly I know, but think about people you know with any of the above illness I mention, or even people with ones I did not. What are they now doing, probably looking for ways to either cure or manage their illness. I only say this because it was not until I saw myself as having an illness, and not as an illness, that I really started taking care of me. As an illness everyone was fighting me, including me. But having a illness, I was willing to fight it because, I refuse to let an illness have my life without fighting back.
03:06 PM on 04/20/2011
Thanks for this excellent point! I've written an article about stigma and referring to oneself as "being bipolar." I don't actually do that in my real life, I didn't title this article the way it came out. Thanks again!
06:41 PM on 04/22/2011
I'm not bi-polar, but I do suffer from some pretty debilitating anxiety/depression disorders. I don't really care how you say it: I have to deal with it regardless. Usually I just tell people I'm crazy and leave it at that. Honestly...I'm still stuck with these disorders, so what difference does it make how I want to refer to them, I guess...
10:58 PM on 04/22/2011
If you consider yourself stuck, then you will be, I guess. I will only suffer as much as I allow myself to suffer. I will have the illness all my life that is true, but I refuse the let the illness have my life. You have a choice, the illness can own you, you can own it. Sometimes owning it means having to take medication, and finding the right combo is grueling, but in the end so worth it. Like I stated in another comment I decided to take myself off meds a year ago, and doing well thus far, but I work hard everyday maintaining and it's worth it. If I notice I am slipping and can't bring myself back, I will go back on med in a heartbeat. I still have days where it takes everything I have to get up in the morning, but once I am up, I am so glad I made the effort.
11:29 AM on 04/19/2011
at 55 I have been tring to live with Bi-polar manic depression for the last 10 years, Crying was just normal..When I failed 5th grade I tried a bag over my head, but the hot steamy,, feeling in the bag was to much, I failed ..Years later I tried a drug overdose, , I again failed. a few years later i tried car exhaust,.I was blue when they yanked me out, I commited myself ,.A year later I tried again, I started to drink poisen, I couldent keep it down., . I finally got help, I now have no more thoughts of susicide, And when a BAD thought hits me I am now able to avoid it.,I was making my own electric chair, What a glouris newspaper headline, MAN dies in homemade electric chair,,).....Ther is hope for us that have issues with depression, Dont dwell on bad thoughts, seak a friend to talk too, Get help and for Gods sake & Dont have a gun in your house,tooo easy,and final. id been dead several times over, if They (nuthouse) made me get rid of them,NOW I RELISE THAT BAD THOUGHTS and dwelling on them issnt normal and there is help for those that want to except it, and Whatever dont give Up,stay on your meds and dont mess with your doses, Wakeing up crying was normal for me,,, NOW I wake up Happy..
05:33 AM on 04/19/2011
I am 57 and Bipolar I. I was just discharged today from the psych ward after an 8 day stay following a suicide attempt. I worked all my life including 13 years as a prosecutor. Now I am on disability. It's 3:00 am and I can't sleep. I am contemplating how I am going to pay the $6,000 cost for the stay at Hotel Crazy. Anybody who is critical of someone seeking disability for severe Bipolar symptoms hasn't a clue. You ought to walk a mile in a mentally ill person's shoes before you lob a hate ball at someone on disability. Working in an environment that severely stigmatizes mental illness is extremely difficult - especially when you can't predict which Bipolar express train you will be on at any given time. Sometimes disability is the last and only resort.
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HUFFPOST SUPER USER
Jessica Suarez
Run for the hills
02:50 PM on 04/19/2011
Hang in there Melissa. You're right, unfortunately in this country mental illness is not treated with the the respect that it should, and neither are the people who suffer with it. Hopefully this attitude will change and bring about changes in treatments also. Take care of yourself and don't worry about what others say. Only do what is best for you.
01:01 PM on 05/10/2011
Melissa,

The very best to you. We went to Hilltop High School together (you were Mellissa Ewy at the time) & graduated in 1970. I sure as hell hope your employer DID NOT stigmatize you for having a bipolar disorder. Do not consider what you are doing as "the last and only resort." You will get better and those that stigmatize, they never grew up and find critizing someone with a disability their way of feeling important and striking at the system they blame for their own self-inflicted shortcomings.

God bless,

Tony Rangus
03:14 AM on 04/19/2011
What a great story. It brought tears to me eyes.
You have been through so much. You met 'one in a million' when you met your husband. Congradulations to both of you.
HUFFPOST SUPER USER
jwinps
12:49 AM on 04/19/2011
Great article. I have Bi-Polar II, which does not have as wide a swing towards the "manic" i.e., high side. However, it does have the extreme depressive side. I wasn't diagnosed until I was almost 60 when I finally reached a crisis point. I'd always thought the swings were something everyone experienced. I never liked feeling good, or extremely happy. I actually dreaded feeling happy because I knew it was a pre-cursor to a fall-off-the-cliff depression. A "black hole" depression where death seemed preferable and suicide a viable solution to eliminating the mental and emotional pain. My drug abuse for coping was in the form of alcohol. It's amazing that I actually still have a liver. My meds now keep me on even keel for everyday activities, something that never happened before my taking the meds. Through help, I also am now free of alcohol. Meds are not a cure-all, however. I still can be set into a tailspin if something negative occurs [can even be relatively minor.] But now, the tailspins no longer occur on their own even when things are going OK.
11:31 PM on 04/18/2011
Bi Polar disorder. WOW. I had tears streaming down my face reading that article. That could've been my story, except I haven't been diagnosed, and no happy ending. I'm just crazy, and drive everyone away. I can't stop it, can't snap out of it. My Mom suggested I might have it several times, before she died. I'm wondering if they told her something she didn't like, and never shared with me. I want to work, and have tried. Best I could do was subsisting on the edge. Couldn't go to bed, or couldn't get out of bed. Never in the middle. I've been unable to work for most of the last ten years, so no insurance, no money, no shrink.
I am NOT on disability, but my saint of a husband is. He had a stroke in 01. He worked hard all his life, paid into S.S. every week, from the 1960's. Thank God, or we'd be homeless.
Being on Disability does NOT equal Lazy!
Sometimes people abuse the system, and they make life more difficult for everyone, and I do mean EVERY ONE.
10:13 PM on 04/18/2011
In all seriousness, the best help for bi-polars is to insure getting 8 hours sleep each night. If it means taking sleeping pills, do it. Talk and analysis is a waste of time; just stay or your prescribed medication. Get some good outdoor exercise. Your symptoms may diminish as you age. Good luck, I know several people who got this under control.
09:59 PM on 04/18/2011
I COMMEND you in your "never say die" attitude!! I know bipolar disorder isn't an easy illness to deal with, but yet you have!! your meds, the help of a therapist, the love of your family and God will see you through!! Good luck!
09:42 PM on 04/18/2011
Working is very difficult, and despite solid attempts, I'm still on Social Security. But I've completed my bachelor's and master's degrees, and now I'm working on my doctorate.

I happy you got your life back and found love...you learned the hard way that hard work pays off. However the fact that you are still on social security in spite of having a bachelor's and master degree is beyond me. I have earned a bachelor's and doctorate degree and had to take out student loans, with no assistance from the government to help me (well besides the student loans with ridiculous interest rates.
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HUFFPOST SUPER USER
thepill
My micro-bio is half-full.
04:58 PM on 04/24/2011
Academia and the work world are very different. One of my best friends has a bi-polar diagnosis and has done the same thing. She has several degrees but has only held odd jobs. There certainly are structural differences between the world of academia and the world of work that explain this phenomena. Don't take it so personal, omallii.
09:01 PM on 04/18/2011
We have a friend with this illness. Refuses to accept medical diagnosis, refuses to take meds, refuses to admit there is a problem. Fired from 5 jobs in the last year, kicked out of at least 4-5 places that I know of. Now homeless (again). Just can't help anymore. This used to be a bright, charming person. Has wrecked every single thing they ever had, and won't listen.

People who refuse to admit this is a real illnesss just play into these people's hands. They want to be told there is no such thing. They want to hear they'll be fine if they just snap out of it and get a job. It doesn't work.
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09:01 PM on 04/18/2011
I'm bipolar and the only thing that works for me is working hard for people for place to live so i can sleep at night. I have been jumping around since i left the USMC in 74 and haven't had a regular job except for one CETA job in 1975. They finally gave me some money to live on in 2004 but i give it to my childs spouse so they use it for their care. I tried meds but they made me eat and get fat and even more depressed. I have done lots of productive work for others but never for myself. Eventually people say i did enough and tell me to move on.thankfully my 88 yr old mom needed help so i have been helping her for a few yrs now and am buying an old house in the country i am fixing up and that keeps me busy. We have no plumbing but one day i will. Anyway i tried the college thing only to get two degrees but never getting a job. . Your fortunate to have found love which really can help many bipolar people to feel loved and secure and normal. I have been in over 10 mental hospitals and have scars all over my arms from cutting up but i finally decided to listen to God and wait for Gods time to take me in the mean time i work every day to pass the days and be able to sleep.
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HUFFPOST SUPER USER
Jessica Suarez
Run for the hills
02:57 PM on 04/19/2011
Best of luck to you in everything you do. Take care if yourself.
08:32 PM on 04/18/2011
I was diagnosed in 1996 with bipolar disorder, at the age of 26. For six years after that I was in and out of mental hospitals and saw several different psychiatrists. At one point I was on 11 different medications a day and on disability. Until the day I decided to take my life back. I found a no nonsense doctor who said, I don't have time for games either you take care of yourself or I don't want to have anything to do with you, in not so many words. He got me down to two medications a day and made me education myself about my illness. I stayed with him for about 5 years and am very grateful for having met him.

Since that time, I have gotten a job, which I have held for three years now and have been promoted once and am up for promotion again. I decided a year ago to take myself off medication, knowing the risk, but also knowing that if I needed to go back on I would. So far so good, I am keeping my fingers crossed. When I see myself getting stressed, I take what I call a mental health day, and just do things for me, that calm me down or make me feel better. Sometimes it's reading, sometimes it's going out to eat, singing loudly, exercise, or sitting out in the sun catching rays. It's very important I take care of me.
08:31 AM on 04/19/2011
go back on your meds!!!!!!!! at least take omega fatty 3 . . .see mass general study
10:58 PM on 04/19/2011
Right now I am doing well without meds, and would like to continue on this path. No worries though, if I see myself slipping I will return to medication in a heartbeat. Not against meds, but would rather not be on them if possible. I watch my moods and triggers carefully. I take a daily assesssment of me and write in my journal often. I have recently gone through several very stressful things in my life and have made it through with flying colors. Years ago those type things ould have sent me to the hospital, but instead, I got to work on trying to find solution to the issues. I have also managed to quit smoking cold turkey just three months ago. So I think I am doing pretty good. I know it could change in a instant, and am ever mindful. Bipolar is like any illness you have to learn to manage it. I don't recommend anyone go off meds that is for sure, but for me I felt it was right, and the right time. I educated myself and made sure I was fully aware of the risk. I have a support system in place, and someone I can call to help me get on track if needed. I also have the numbers to crisis hotlines on me at all times, I have used them in the past and will not hesitate to call them should the need arise.
08:15 PM on 04/18/2011
Really.... come on . Do you know how many people have these exact same symptoms every day yet somehow find a way to live a life where they actuaaly work and have a job and contribute rather than go on disability from social security and suck of the system. At some point those of us who work and pay into the system will be far outnumbered by those recieving a government check then the whole thing will crash. I believe that is what is happening now. Over 50 % of us pay no federal income tax??? Please. Get a job and contribute and quit trying to get in touch with your feeeelings. Suck it up sally. Nice home and car in the back ground of your family photo. Could you maybe send me a thank you card at least?
08:26 PM on 04/18/2011
She might give some of the money back to the tax payers from the book proceeds.
08:44 PM on 04/18/2011
Yes, and when you see a news story about some one who went on a shooting spree in an office what do they some of they co-workers, friends and family say? He/she seemed depressed or I can't believe he/she did this, the seems so upbeat yesterday. Mental illness is real and should be treated. The symptoms of bipolar disorder do not come and go, they are with you on a regular basis. It is not a matter of just being sad today, or being euphoric today, it is a crazy roller coaster. Living with bipolar disorder, I can tell the difference if my mood is do to my just having a bad day,or my illness. But that only came with education. Sure everyone has a bad or down day, or even week, but when your down day last for a year, then it is something else. People with your attitude, are the reason some people that really should get help avoid it.
08:57 PM on 04/18/2011
People with my attitude???? your talking about working contributing members of society who foot the bill for every welfare program in the country. Shame on us.
07:45 PM on 04/18/2011
Thanks for sharing; your story is very inspiring.