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Riva Greenberg

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Diabetes Confusion: It's Everywhere

Posted: 09/15/11 12:51 PM ET

A few week's ago AOL's welcome screen picked up an article I wrote here about a cartoonist with type 1 diabetes. Two things happened. One, the article got a burst of comments -- 116.

Two, it confirmed how confused most people are about diabetes. About its symptoms, causes, about healthy eating and managing blood sugar. And most of the comments came from people who have diabetes.

So, I'm posting some of the comments, and below them I am indicating what is true and accurate. Since diabetes is a self-managed condition, you better know what you're dealing with so you can manage it. Further, you can't create the long, healthy and vital life you can have, if the rules of the road you're following are driving you straight into a ditch.

Comment: No type of diabetes, 1 or 2, is caused by obesity, please do your research before commenting. I know people that were of average weight when diagnosed with either one rather than obese individuals. Diabetes is and always has been an autoimmune disease.

Truth: Twenty percent, 1 in 5 people who get Type 2 diabetes, are not obese or even overweight. Yet, most are, and there's controversy whether being overweight is a cause of Type 2 diabetes or a result. Type 2 diabetes is caused by insulin resistance, which is believed to be influenced by genetics, being overweight and sedentary. As for the last statement, only type 1 diabetes is an autoimmune condition where one's own cells attack the body's insulin-producing beta cells in the pancreas.

Comment: I am well aware of the complications of diabetes seeing as I am one. I have been told that diabetes is an autoimmune disease several times: However, the fact that Type 2 diabetes can be cured by a bypass operation indicates that that theory may not be correct.

Truth: Again, only Type 1 is an autoimmune condition. As for gastric bypass, many people with Type 2 diabetes who undergo a bypass operation are able to reduce or get off their medication. However, I believe that they are not considered "cured." Rather, the symptoms of diabetes have become dormant. Should they put on weight again, the symptoms can recur.

Comment: I have Type 1 and I would never wish to have Type 2! Just because you have Type 1 means you can't have sugar, but it also means you can't get overweight!

Truth: Neither statements here are completely true. Anyone with diabetes, Type 1 or Type 2, can have sugar. The same diet recommended for all Americans is recommended for people with diabetes and it may include sweets. However, if you're trying to eat a healthy diet and/or trying to lose weight, sweets are recommended sparingly. Second, having Type 1 diabetes does not mean you can't be or become overweight. Like anyone else, eat too many calories without burning them off and you will gain weight.

Comment: I feel sorry for those with Type 1 diabetes. I do not feel sorry for those (or most of those) with Type 2, because it was brought on by choice. Please keep in mind there is a big difference. Much like the difference between the few who cannot work and those who will not work.

Truth: Likely no one with Type 2 diabetes would say they chose to have it. While it seems implied here that Type 2s cause their disease by being overweight and sedentary, as you now know one can be slim and active and get Type 2 diabetes due to a strong genetic component.

Comment: Last research I did on Type 1 diabetics, [I read that there were] about 16 million in the U.S.

Truth: According to the Juvenile Diabetes Research Foundation, there are approximately 3 million people with Type 1 diabetes in the U.S.

Those are only a few of the many, many comments that were inaccurate. But I also want to share two more comments because they were spot on:

Comment: Diabetes isn't a death sentence, ignorance is. Learn about your condition and accept the fact that you had no choice in the matter. If you monitor your sugars, have regular check ups, follow a nutritionist's expertise and diet, and figure out what normal foods spike your blood sugars you too can live a long and healthy life.

Comment: I cannot believe some of the posts I have just read. I have had type 1 diabetes for the last 53 years and have gone through every emotion from anger to "why me." I have been very fortunate not to have any of the complications that can occur from this disease. I must thank my mother for keeping me healthy for all the years I lived at home. When I was found to have diabetes, I was 7 years old and will turn 60 in Oct. I gave birth to two beautiful daughters and have five grandchildren, all of whom are healthy ... I hope that someday there is a cure, but until then I will live my life to the fullest and not let diabetes win. I feel sorry for the people who think their lives are over because of being diagnosed with diabetes and become bitter and slaves to it. You have to take charge and decide how you want to live.

Here's your quiz, if you think:

  • Being told you have "Just a touch of sugar" is insignificant

  • Only kids get Type 1 diabetes

  • Diabetes causes blindness and amputations

  • Type 2 isn't as serious as type 1

  • You can't have diabetes because you have no symptoms

  • You can't prevent your kids from getting diabetes

Or, if you're just not sure whether what you know is true or not, I'm going to recommend a great book, my own which was written with 21 leading diabetes experts, "50 Diabetes Myths That Can Ruin Your Life and the 50 Diabetes Truths That Can Save It."

Don't go another day with your head in the sand; you can't have your best health until you know what you know is true. And don't miss out making sure now that you'll be here when they find a cure.

Riva is the author of "50 Diabetes Myths That Can Ruin Your Life and the 50 Diabetes Truths That Can Save It" and "The ABC's Of Loving Yourself With Diabetes." Visit her web site Diabetes Stories.com.

 
 
 

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09:55 AM on 10/20/2011
Riva: on your point on item #1 "As for the last statement, only type 1 diabetes is an autoimmune condition where one's own cells attack the body's insulin-producing beta cells in the pancreas", new research on this suggests that type 2 diabetes may also have an autoimmune component according to the April 17, 2011 scientific/medical journal Nature Medicine http://goo.gl/77EsY . However, the autoantigens are very different from type 1 diabetes, and unlike type 1 diabetes, people with type 2 do not appear to have islet cell antibodies, so these are not the SAME autoimmune diseases.
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Riva Greenberg
01:33 PM on 10/04/2011
It is true statistics are never exact, and there are a population of people with diabetes who are misdiagnosed, usually due to an assumption that if they're older they have type 2. But LADA is considered a separate condition from type 1 diabetes.

As for eating carbs, the point is that you can. Many people think they can't eat sugar and it's just not true. The question of whether you choose to eat carbs or not, or how it affects managing your blood sugar, is your individual question to answer. Personally, I eat what would be considered a low carb diet and the majority of the carbs I eat come from vegetables and fruits.

One of the reasons there are so many myths about diabetes is it's a complex condition, it behaves somewhat differently in each of our bodies and there are a lot of metabolic processes that underlie the condition that are still being slowly understood. What's important, is to have the basic knowledge under your belt to do your best managing your blood sugar to prevent or delay complications.

This isn't a spitting match or who's right, it's about understanding the basic workings of diabetes, whichever type you have, so you can live your healthiest life.
12:19 AM on 10/04/2011
Unfortunately, Riva Greenberg continues to perpetuate some myths. For example, althought an oft-stated myth is that 20% of people with Type 2 diabetes are not overweight/obese. But if that 20% is tested for the antibodies indicative of Type 1 autoimmune diabetes, at least half will be antibody positive and in fact have Type 1 diabetes (they have simply been misdiagnosed, which is incredibly common). Then, the Juvenile Diabetes Research Foundation may state that there are 3 million Type 1 diabetics in the U.S., but JDRF excludes those with slow-onset Type 1 diabetes (often called LADA) from those statistics. So the actual number of Type 1 diabetics in the United States is far greater than 3 million.

In the United States today, if you are an adult with new-onset Type 1 diabetes, you most likely will be misdiagnosed as having Type 2 diabetes due to age not etiology, and you will be counted as a Type 2 diabetic in statistics.
11:06 AM on 09/20/2011
Great article... It can motivate and save many people... The third world country should be made aware of these kind of sickness. Like what you said because of ignorance, most of the people i knew who had diabetes died in 3-5 years from - you know what- depression!
02:32 PM on 09/18/2011
I like your article on diabetes confusion everywhere.As I like it hoping to like by all people,due to be a great article .
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DrP
08:16 AM on 09/18/2011
You lost me on "diabetics can have sugar" and "eat the same diet as all Americans."
Wow. That's a recipe for disaster for Type II's. Sure, those of us with insulin-resistance can eat whatever we want - it's our choice, but the results will be catastrophic.
Carbohydrate restriction (sugar in particular) is the best we to manage this condition. Carbohydrates all metabolize as glucose, which the insulin-resistant person cannot utilize as fuel because the cells are resistant to the action of insulin which allows the cell to take in glucose. Since fat does not require insulin to metabolize, it is the nutrient class that is optimal for us to consume. It is simply biochemistry and to ignore this is to prevent the Type IIs and those of us with insulin-resistance who have not yet "progressed" to Type II (and most will) from achieving normal blood sugar and insulin levels. Since high blood sugar and insulin levels are at the root of most diseases of civilization, this control is crucial for good health. 12 years of a very low-carb, high-fat diet have kept my levels very low despite a strong family history of "Type II Diabetes." Please stop telling us to eat sugar and the other components of the "American diet (properly called the SAD) that we can't tolerate: grains and starches.
11:49 AM on 09/19/2011
Thank you for telling it like it is. After a few months of really bad diet and worsening symptoms of chronic hypoglycemia/insulin intolerance, I've come back to only thing that makes me feel better: a diet free of sugars, grains and starches. There is so much emphasis now on "healthy" carbohydrates and the idea of needing them for energy (nonsense--didn't anyone pay attention in eighth-grade biology?), but for a hypoglycemic or diabetic, sugar and high-glycemic carbohydrates pave the road to illness.
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thepoordiabetic
Ronnie Gregory M
12:11 PM on 09/20/2011
Choosing not to eat something that you can is not the same as not being able to eat it. As a diabetic, Just because I can eat sugar/carbs does not mean that I will, I know what it will do to my body If I do. Cant and Wont are two very different words....
05:34 PM on 09/24/2011
Not all diabetics are the same, some can tolerate a moderate amount of grains and starches others like me can handle a large amount. I have been a type 2 since 2004, was overweight, had hypertension and high cholesterol. I chose the dash diet which is a high fiber, low sodium, low fat, and low sugar eating plan. The eating plan focuses on fruits, vegetables, whole grains, low fat dairy and lean meat & fish. I don't eat anything made from white flour or white rice and very little sugar. I was able to get my diabetes under control in one month after starting this eating plan. My a1c was 10.5 when I was diagnosed and my fasting blood sugar was 257. I lost 150 lbs 1 1/2 years and have kept it off for over 6 years. My yearly a1c test has been 4.2 for the last six years. fasting levels 70-85, 2 hours after eating levels range from 85-105. I usually eat 2400-2500 calories a day and 300 to 400 grams of carbs a day. I am not saying all type 2 diabetics should follow this plan, I am only stating what works for me. If a very low carb, high-fat diet works for you that's great. But do not say every diabetic can't tolerate grains and starches. Each type 2 has to find a eating plan that best fits their needs and allows them to control this disease.
12:43 PM on 09/17/2011
Riva, you make me think of "Don't curse the darkness - light a candle!"

Thank you for continuing to fight the myths.
11:27 AM on 09/16/2011
Thank you, Riva, for addressing some of the vast supply of misinformation that circulates about this serious issue. There is so much good information available, and so many options to support people with diabetes who are willing to commit to effective self-management. I advocate three essential committments to finding the motivation to confront diabetes, and the first is "reality". There are some unpleasant realities, of course, but the most important one is that by our own daily behaviors we can have a profound influence on the course of diabetes in our future....this I know first hand. Thanks again.
10:14 PM on 09/15/2011
Great article. My husband has Type 2 diabetes and is one of those with his head in the sand about his condition and living with it. He fails to watch his portions,doesn't attempt to exercise even chair excercises, and finds solace in his chair and TV. He talks of taking trips & doing various activties, but his obesity has led to lost of cartilage in one knee and walking a distance is not possible. He also has neuropathy. I am very frustrated at times with his apathy and his 3 grown children have resigned themselves to the fact that he will not change and find it hard to come visit when all we ( he) will do is sit, talk or eat. He can not even play with his grandson who is 2. So, for those of you have diabetes, stay informed, stay motivated, and stay active.
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DrP
03:10 PM on 09/18/2011
The answer might very well be a high-fat, low-carb diet. Please look into this. "The Art and Science of Low-Carbohydrate Living" is a new book that might be helpful, but the Atkins books are classic and have excellent chapters on treating high blood sugar.
07:46 PM on 09/15/2011
Great post Riva, thanks for helping to educate and clarify many of the misconceptions out there.