More

Featuring fresh takes and real-time analysis from HuffPost's signature lineup of contributors
Riva Greenberg

Riva Greenberg

Posted: November 8, 2010 02:17 PM

Help Take Diabetes Out of the Closet

What's Your Reaction:

2010-10-29-Screenshot20101029at3.24.34PM.png

November 1st ushers in Diabetes Month. Diabetes organizations are in full swing to raise public awareness about this preventable disease, spreading epidemic and fifth leading cause of death in the U.S.

Here's the global symbol for World Diabetes Day, November 14th:
2010-10-29-WDD_logo_100px.jpg

What to Know:
If you are overweight, sedentary and have diabetes in your family, get a blood test at your doctor's office that tests for diabetes and pre-diabetes.

Having diabetes, I fly around the country educating fellow patients formally through talks I deliver, and informally when it comes up in conversation. (Yes, that's me above.)

But I recently noticed that in public I have a tendency to hide my diabetes so I don't make others uncomfortable.

The only public place I don't hide it is when I'm out at a restaurant with friends. I take my insulin injection at the table. Yet even though I don't skulk off to a dimly lit ladies room to shoot up, there's something almost furtive about my quick hand gestures: I remove my vial and syringe from my handbag under the table, put the syringe in the vial, draw up my dose, flick air bubbles out of the syringe, pull back a tuck of shirt and inject so discretely that nine times out of ten no one notices.

Injecting in public, however, when I'm not with friends or don't have a table to buffer me, is something I do hastily and try to be unnoticed. Why? Good question and I'm not sure I know the answer other than taking injections and piercing yourself for blood is not something we usually do in public.

Yet, I'm tired of hiding. Aren't you? And aren't we doing the public a disservice by not allowing them to see what managing diabetes is and requires? I know I'm doing myself a disservice; making myself physically smaller by managing my diabetes on the sly, while I have so much to stand tall about living with this disease successfully for almost four decades.

Two years ago, for the first time, I forgot to be discrete. I was sitting in Orlando airport when having just stuck the needle in my stomach, a woman and her young son were standing directly in front of me. They were staring at me in what looked like horror. She's a junkie, I'm sure the woman was thinking. Without thinking myself, I apologized profusely for what she was viewing and scurried away.

I sat down a few rows away with the shadow of evil hanging over me. According to my diabetes etiquette handbook, I don't shoot up without first checking that no one will see -- at least not from the vantage point of standing right on top of me.

A few minutes after switching seats I had another thought. I wished I had said to her, "Don't worry, I have diabetes. I'm taking insulin, and yes, I'm moving out of your seat (I mistakenly ended up in it when she took her son to the restroom) as soon as I get this needle out of my stomach." I wish I had used that moment as a learning opportunity -- for her and her son -- and a validation of myself for all that I do managing my illness.

A few more moments passed when I wondered what it must have looked like to her. It's so out of the ordinary to see people with diabetes, who use insulin, injecting themselves and poking their finger to get a drop of blood to test their blood sugar in public.

I couldn't blame her for her dismay, and it made me wonder where are all my fellow diabetics? Why don't I ever see anyone testing and injecting? It's not just type 1s who use insulin. Forty percent of type 2s use insulin also. Yet I feel we are all squirreling away out of sight doing our dirty deeds.

No wonder we need a Diabetes Month to help the general public see what this part of diabetes is.

I think it's time to open that bathroom door, to stop sneaking off to the restroom (particularly as the lighting is so bad) every time we need to inject or check our blood sugar.

So I'm calling, this month, for people to come out of the bathroom. Let's make it a grassroots movement to raise diabetes awareness. Let's use performing our diabetes tasks as teachable moments. Let's let others see that diabetes is serious business, and at the same time manageable. And, that we're doing our business even if they're standing there.

I wish I could go back and tell that woman in the airport what I thought to tell her minutes later. "I have diabetes and this is what I have to do to take care of it. Do you have any questions I can answer?"

If you bump into me this month don't be surprised by what you might see. And have you got any questions I can answer?

Stay tuned for my next post which will feature a great new video that's part of a campaign where you can help get life-saving insulin and diabetes supplies to children in need around the world.

 
 
 

Follow Riva Greenberg on Twitter: www.twitter.com/diabetesmyths

 
 
  • Comments
  • 9
  • Pending Comments
  • 0
  • View FAQ
Comments are closed for this entry
View All
Bloggers
Recency  | 
Popularity
photo
thepoordiabetic
Ronnie Gregory M
12:52 PM on 11/20/2010
Yes I would definitely shoot up in public http://t.co/dBBf5ZZ
11:21 AM on 11/14/2010
Never seen a public sharps container in Australia unless it was for drug users. It's a pity too many people associate syringes with anything but diabetes and insulin. Then again, people get so much wrong about diabetes... any major diabetes education campaign would be welcome! Like others, I now have a pump, which most people I encounter have never seen the likes of before! I don't hesitate to test in public... it doesn't involve a syringe!
07:57 PM on 11/11/2010
Riva, this is an excellent idea. Many years ago I would go into a bathroom to inject. But I've NEVER been in a bathroom where I felt comfortable doing it. Now I'm got a pump and CGM so I've less opportunities to be visible about my diabetes. I've always found this to be beneficial.
photo
HUFFPOST BLOGGER
Riva Greenberg
01:10 PM on 11/11/2010
True to my own vow, on an airplane the other day to Buffalo I got into a conversation with the passenger next to me about diabetes. When I had to inject for the lunch I brought onboard, I did it with no hiding and no apologies. She asked me about the syringe because her brother in law has diabetes and it became a learning opportunity for which she thanked me. How liberating it felt to just be me and do what I do.
04:25 AM on 11/09/2010
On the question of using glucometer and / or insulin (Lantus Solostar) in public, I just do it on the following principle.
The people who know me do not mind and those who do not know me I do not mind. Ofcourse, I try not to be blatant or advertising.
07:15 PM on 11/08/2010
Riva,

Great article and plan. We have been working on this for the past two years not just for November. It has been a long hard road but we haven't given up. We have restaurants now in the California area looking to add sharps containers to their establishments and we are not working with one city here in California to add sharps containers inside their tourist bureau building.

I understand your idea but wanted you and others to know that there is a grassroots movement attempting to do this and it would be great for all of us as diabetics and people living with diabetes to come together and really make this happen all the time not just for November.

Stand up and be counted now. We are asking for everyone to support projects and initiatives like this

For more info you can find us at https://1diseaseworldvoice.org

We are also working to get 1 Million names in support of diabetes awareness, education and research in 30 days. Nothing is being giving away. Just total support for our work with no moeny wanted just names
Thanks
photo
HUFFPOST BLOGGER
Riva Greenberg
07:44 AM on 11/09/2010
Great to know you guys are on this. I first saw a Sharps container in the Qantas airplane bathroom some years ago. It was shocking and fabulous! The only other time I've seen a Sharps container in public was in an airport bathroom, but can't remember where. And I got another little zing of acknowledgement.
04:16 PM on 11/08/2010
It was great talking to you the other day - I appreciate the clarifiation / education on the insulin factor. If my disease progresses and if I become insulin dependent, I will remember our conversation. I can slow the progression of diabetes but I cannot stop it. Society seems to blame diabetics for their condition -- education is imperative. I will come out of the bathroom and test my blood in front of others with you. I will also pass the word along. Great blog today Riva! Best : Denise Costabile
03:03 PM on 11/08/2010
As the parent of a young child with diabetes we have chosen never to hide blood glucose tests or injections. Diabetes is something she will live with for the rest of her life and we feel that there is no shame in doing the things she needs to do to manage it. We feel like by hiding we would be sending the message to her that diabetes is something she needs to hide and therefore should feel ashamed about.

I say do what you need to do where you need to do it. And if it's in front of people, so be it. The majority of people will not be horrified and to your surprise, many might have an understanding and first hand experience.