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JL sheridan's Comments

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A Child With Autism, And A First Job

A Child With Autism, And A First Job

Commented Apr 7, 2012 at 08:23:53 in Parents

“"On of ours". Yes, my husband and I say that, too. We often feel protective, proud, concerned, worried for or jubilant for, whatever the case may be, when we see "one of ours". Yep, all "soft and squishy", too. And I certainly hope that we are respectful, not calling attention to the person, but we can't but help shoot each other a small smile.”
huffingtonpost entry

The Unthinkable

Commented Apr 5, 2012 at 16:40:51 in Crime

“Please, do not ever, ever hurt your child. GET HELP.

National Child Abuse Hotline: 1-800-4-A-CHILD (1-800-422-4453) (24h US &Canada)
Autism Society of America: 1(800) 328-8476
Autism Speaks, Autism Response Line: 1 (888) 288-4762,
En Español (888) 772-9050”

diaryofamom on Apr 5, 2012 at 21:39:40

“thank you so much for adding these resources. it's so important to make the call the moment that you feel yourself losing control. if you or anyone you know ever entertains thoughts of hurting their child or themselves, please - ASK FOR HELP.”
Tennessee Abortion Bill Is Dangerous

Tennessee Abortion Bill Is Dangerous

Commented Mar 21, 2012 at 21:07:43 in College

“"NASHVILLE, Tenn. (AP) - An amendment to a bill in the Tennessee Legislature that would have resulted in the online publication of the names of doctors who perform abortions has been withdrawn amid a flurry of controversy.

Also withdrawn from consideration is a proposal that would have required posting statistical information about women who undergo abortions. Critics said it had the potential to inadvertently identify women who've had an abortion."

http://www.wmctv.com/story/17213037/controversial-abortion-proposal-withdrawn

LA Crystal on Mar 21, 2012 at 22:33:13

“Thanks so much for the update! These people claim to be the 'moral' party? sheesh.”
huffingtonpost entry

We Need a Personhood Movement for Women, Too

Commented Mar 21, 2012 at 20:15:48 in Politics

“The current bill in TN has been amended, and the portion requiring the reporting of doctor info and patient demographics has been withdrawn by the sponsor.

http://www.volunteertv.com/news/headlines/Controversial_Abortion_Bill_dramatically_changed_in_Nashville_143720026.html?ref=026
The Value Of A Life Cut Short

The Value Of A Life Cut Short

Commented Jan 17, 2012 at 12:43:14 in Parents

“As a mother of a little boy with autism and intellectual disabilities, I thank you, too.”
Denying A Transplant To A 'Retarded' Child?

Denying A Transplant To A 'Retarded' Child?

Commented Jan 17, 2012 at 00:10:55 in Parents

“I was actually talking about the family in general, and perhaps they have made donations or sacrifices in general, there's no way for us to know.

Hopeful that this family is successful, and that one of them will be a match for a very loved little girl. And for her I am grateful that she has such a wonderful family,

janethewordnerd, I wish you the best of luck, and hope that someone will be there for you should ever need someone to stand by you when you need comfort and support.”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 22:00:25 in Parents

“The woman you are replying to, Sunday Stillwell, has researched this pretty well, I imagine. She has spoken to the family, she has advocated hard on their behalf, and has been quoted in by USA Today and CBS news about this very issue.”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 21:57:15 in Parents

“Why not? If you don't know them, why assume you know their donor history?”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 21:55:47 in Parents

“The family requested that they be living donors, and according to the family, were told that the operation was still not possible at that hospital, and they were welcome to try elsewhere.

http://www.wolfhirschhorn.org/2012/01/amelia/brick-walls/
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 21:54:43 in Parents

“Okay with you though, if that is indeed the truth? What about others, who may have intellectual disabilities, but no underlying physical barriers to a transplant? Required due to the result of a car accident, let's say?”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 21:52:09 in Parents

“The family wants to be donors. They are not asking anybody to "jump out of the lifeboat" for their daughter.

http://www.wolfhirschhorn.org/2012/01/amelia/brick-walls/.”

Cascadienne on Jan 16, 2012 at 23:33:23

“You're missing the point - this is a general discussion about the ethics and morality behind these issues, not issue-specific.”
Denying A Transplant To A 'Retarded' Child?

Denying A Transplant To A 'Retarded' Child?

Commented Jan 16, 2012 at 17:54:06 in Parents

“Historically, people with intellectual disabilities have been routinely denied equal access to organ transplants all over the world. Unfortunately, this has to do with discrimination against an entire group of people because they do not have "normal IQ".”
Denying A Transplant To A 'Retarded' Child?

Denying A Transplant To A 'Retarded' Child?

Commented Jan 16, 2012 at 17:45:40 in Parents

“How do you now they do not or have not donated to others, hmm?”

janthewordnerd on Jan 16, 2012 at 17:50:20

“Not a biology major, eh? Obviously if they have one to spare, they have not yet donated.”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 17:19:21 in Parents

“Actually, if you read the accompanying parent's report of the situation, you'll see that intellectual disability was the reason given when the family's transplant request was denied.

That's why I focused on it.

http://www.wolfhirschhorn.org/2012/01/amelia/brick-walls/

bdunlap52 on Jan 16, 2012 at 17:49:15

“Her conditions include a shortened life expectency, most afflicted by this condition do not live past the age of two. She has heart problems. Her condition makes her a non-viable candidate for this procedure. The fact that these symptoms may stem from her retardation does not change the fact that she has them.”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 17:11:53 in Parents

“Not according to the family; they were told intellectual disability was the only reason and that no other was needed, apparently, because that was enough.”

janthewordnerd on Jan 16, 2012 at 17:40:15

“I don't believe that for a second, and neither should you.”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 16:52:44 in Parents

“Even though UNOS and every humanitarian organization in the world publicly states that intellectual disability must not be a barrier to receive organ transplants?”

bdunlap52 on Jan 16, 2012 at 17:03:21

“Mental retardation was not the only thing wrong with this child receiving the transplant. The girl also has a degenerative disease that restricts her life expectancy. Organs are a precious resource, to be given to the best candidate. Retardation alone is not the only aspect to this case, just the only one that you are choosing to focus on.”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 16:47:52 in Parents

“"Mentally retarded" was the reason given to the family. No other medical reasons were given.

http://www.wolfhirschhorn.org/2012/01/amelia/brick-walls/

thebob79 on Jan 17, 2012 at 00:36:50

“That's the reason given by a parent who even admits she didn't hear anything beyond "mental retardation." My guess is that the mother didn't want to hear anything beyond that statement, either - and understandably so.”

janthewordnerd on Jan 16, 2012 at 18:14:17

“You take their word for it, huh?”

janthewordnerd on Jan 16, 2012 at 17:40:45

“Sorry, until I can verify that, I don't believe it for a second.”
Denying A Transplant To A 'Retarded' Child?

Denying A Transplant To A 'Retarded' Child?

Commented Jan 16, 2012 at 16:43:08 in Parents

“But the pediatric geneticist was talking about using the organ donation list. He/She didn't read the article.

"Designated donation is what the Riveras say they wanted to do from the start. 'We were never asking that she be listed," Chrissy said, reiterating that they thought last week's meeting was about the procedure for testing potential family donors. "We didn't want her on the list. We don't want to take a kidney from anyone else. We want to give her one ourselves.'"

So, how is this unacceptable?”

janthewordnerd on Jan 16, 2012 at 17:13:24

“So you didn't read his post. Unfortunate.”
Denying A Transplant To A 'Retarded' Child?

Denying A Transplant To A 'Retarded' Child?

Commented Jan 16, 2012 at 16:36:36 in Parents

“Putting aside your opinions of terminating this woman's pregnancy, and your thoughts on limited organ supply, do you not agree that living donors should be utilized? Amelia's mother told the medical team during their meeting that there were family members who wished to donate, that they never thought to put her on the UNOS waiting list. The procedure was denied.... initially. If you read the article you can see that after the public outcry amongs those of us in the disability community, the hospital spoke with the family and said that the transplant could proceed if she had a living donor. Interesting to know that without public pressure, this probably would not have been the case.”

rothomaha on Jan 17, 2012 at 06:56:18

“Please see my response above to another poster, while keeping in mind that with the inherent risks of anesthesia, surgery and loss of an organ, the donor is put at risk only to defer the inevitable. This is not acceptable medical practice and, while I trained at CHOP, I would not condone the hospital's decision to jeopardize two lives in this case. Public outcry has little to do with the intrinsic risks and hazards of medical practice. Finally, please keep in mind who will ultimately bear the responsibility for any death or serious injury from the procedure, public outcry notwithstanding.”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 16:23:15 in Parents

“In this particular case, the family has requested to be considered for kidney donation, but the procedure was denied.

The mother's story --

http://www.wolfhirschhorn.org/2012/01/amelia/brick-walls/

bdunlap52 on Jan 16, 2012 at 16:30:33

“As I said, if I was the hospital or the insurance agency I wouldn't authorize it. Good on the family for stepping up. As difficult as the situation is, at some point you have to remove emotion from the equation, and that is where the doctors must say no.”
Everyone Deserves A New Kidney

Everyone Deserves A New Kidney

Commented Jan 16, 2012 at 16:08:11 in Parents

“Family members have said they wish to be donors to this little girl, but according to her mother, Amelia was denied the surgery anyway. I think it's wonderful that the family will step up, but why shouldn't people with intellectual disabilities be entitled to a spot on an organ donor waiting list?

UNOS (United Network for Organ Sharing) issued an Ethics Committee report with this resolution under "Mental Capacity":

**RESOLVED, the OPTN/UNOS Board of Directors reaffirms that the eligibility for transplantation predicated on determinations of social worth is morally unjustified. Patients with disabilities should not be excluded from consideration for transplant solely by virtue of their disability.

http://optn.transplant.hrsa.gov/CommitteeReports/board_main_EthicsCommittee_7_31_2007_15_55.pdf

They later amended it, and struck " the eligibility for transplantation predicated on determinations of social worth is morally unjustified" from the resolution. But it is still on record, and you can see that this is what the medical community has historically struggled with -- "determining social worth".

"Social worth." They are talking about *people*. People like my son, and people like Amelia. And yes, denying people with intellectual disabilities access to life-saving organs and transplant operations based on their IQ is definitely, and cruelly, morally unjustified.”

CampusProgressive on Jan 16, 2012 at 19:49:02

“It is morally justified to say that person with handicapped mental capacities to be considered a lesser "person." Of course they are a human, and as such should be awarded certain dignities, but personhood is separate from humanness. What makes a "person" is not well understood but it is possible for a non-human animal with enough mental capacity to be labeled a person. And it is possible for a human lacking in mental capacities to be labeled a non-person.
Dead bodies have no mental capacites, and are not considered to be persons any longer, in a sense. I am not saying that people with disabilities are a kin to walking corpses. There is a definite spectrum between no thought and fully functioning, and somewhere along the spectrum we may be able to discern when personhood rights should begin. How can we ever know exactly? I don't know. I do not think we can say that any thought at all constitutes personhood, because we do not really believe that when it comes to animals. But we can start to make broad judgements i.e. children, autistic, moderately retarded humans are persons. Dogs, people in permanent comas... we can be pretty sure to say that their is something less in their experience, they are not or have ceased to be persons.”

janthewordnerd on Jan 16, 2012 at 16:29:52

“Because it's not just an 'intellectual disability."”