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livsparents's Comments

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Military Families + Autism: A Recipe for Heartache

Commented Jan 31, 2012 at 12:28:18 in Parents

“Give em hell on the hill...They fight for us, the least we can do is fight for their kids...”

hp blogger Amy Lennard Goehner on Feb 8, 2012 at 11:32:27

“They do indeed fight for us. Let's only hope the bill in front of Congress passes, which would give these families the help they so desperately need and deserve.

Albest,
Amy”
huffingtonpost entry

Unencumbered By Facts: What Upsets Me Most About the Anti-vaccine Movement

Commented Jan 18, 2012 at 17:31:04 in Parents

“So we have a set of 22,000 subjects to follow, how long are we watching them for? What are we watching them for? Autism? General heath and well being? Specific neurological issues? Are we simply pulling random data from the half million plus children in the Oregon school system? Oh Ashland? Sorry...22000's about the entire school age population in Jackson County OR. How we gonna get past such confounders as special needs students? BTW, how are we going to figure out whether or what is 'wrong' with these 22000 students? Is this just an excavation of school records in search of IEP's and 504's...because other health and behavioral/learning disability issues are not just going to be on the next column next to 'vaccinated? Yor N' I see even the basic-est of your study looking at maybe autism and one or two more other easily identifiable 'designators' in the school data running into the tens of millions of dollars. And unless the vax-ed vs unvax-ed epidemiological differences exceeded Mark Blaxil's wet dreams, the results would likely yield...nothing.

Personally, I'd rather see the tens of millions go to providing decent OT rooms for every special needs class in the Jackson Co OR area...maybe even the whole state...

DachelBot...lol”
huffingtonpost entry

The Boys on the Bus

Commented Nov 6, 2007 at 17:08:33 in Healthy Living

“While I'll disagree with your ideas of epidemics (Changes in DSMIV criterea to include Aspergers and PDD/NOS, shifts from a Mental Retardation diagnosis, better diagnosis etc), I'll agree wholeheartedly with the appalling lack of knowledge, concern, tact and direction in the pediatricians office. From "Let's wait and see" to "God, let's hope she's not autistic" to "I don't know anything about autism", the answers have been few and far between. Even a basic developmental question like "how many words does she know" fails my 'autism test'. Since she went from 60 words down to 20 at 18 months, she still 'passed' the developmental test, but unless they'd have asked if she had lost any words, she wouldn't have been picked up as autistic until her NEXT well visit. That would have meant 6 months less of critical Early Intervention services...”

Stagmom on Nov 7, 2007 at 20:21:43

“Thanks, Livsparents.
KS”
huffingtonpost entry

The Expanding Vocabulary of the Autism Mom

Commented Feb 16, 2007 at 18:33:26 in Healthy Living

“To mogrammy:
All autism is NOT a biological disorder -do I need to repeat that-all Autism is NOT a biological disorder such as mercury poisoning.
AUTISM is a neurological disorder that affects the gut and the immune system in some children and may be a contributing factor in a subsector of the spectrum. Really, your over generalizing in this area is very disturbing.”
huffingtonpost entry

Late Night with an Autism Mom

Commented Jan 31, 2007 at 17:46:52 in Healthy Living

“I have seen much coverage on the 'causation' side, but I here very little on the human side, the day to day issues. The behavioral and medical issues should be paramount in the media at this point. I was somewhat pleased to see a show dedicated to the human struggle of the parents and the autistics put in the limelight.

We can talk till we're blue in the face about causation, no amount of yelling and spitting is going to get us any further to finding causation. We should let the Combating Autism Act cover the study of the issues, push to have relevent studies done (which should INCLUDE genetic studies sorry guys), but we have parents and autistic children and adults dealing with the issues RIGHT NOW!
We need focus on the plight of all of us dealing with the day to day issues, the insurance companies and their lack of coverage on both medical and behavioral issues; the school systems; and the state and federal governments. All these are in desparate need of attention and we can all affect change right now. I'm hoping that the View helped to accomplish this.
Bill”
huffingtonpost entry

Finally, a Topic Too Hot For The View

Commented Jan 30, 2007 at 12:58:56 in Politics

“"I am so tired of 'coping with autism,'" one young mother told me afterward. "How about stopping it? We don't need more sob-fests. We need answers."

I beleive the Combating Autism Act is designed to assist in researching the causes and classifications (hopefully) of autism.
I, for one, need some more sob-fests. Too much focus on causation and not enough on helping these kids, parents and autistic adults deal with the day-to-day struggle is being done.
If you'd like to focus on a real, true and tangable crime, why not focus on the insurance companies and their continual denial of therapies that can help these kids (and adults) focus and communicate?
Causation is important, but fighting to help autistics emerge from their 'shell' or exist with it is a story that NEEDS to be told...
Bill”