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Susan J. Cobb

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Remembering My Dad Before Alzheimer's

Posted: 12/03/10 06:39 PM ET

I write this the day after my father's funeral in Lubbock, Tex. I've been awake for hours, and I even went out for a walk before daybreak, drawn by a full moon and the thought that exercise might dissipate pent-up emotions. I crept out the door, not wanting to disturb sleeping relatives scattered through the house. I almost fell into the flowerbed. Weird stairs. This is not the house I grew up in. Everything seems strange right now. The moonlight turned out to be mostly from streetlights, the full moon itself unspectacular above the orangey, artificial glow. A wind, dry and dusty, sapped moisture from my nose and lips and left my skin feeling scratchy. Cranky, I crossed the street, turned around and came back in.

I miss my home in Mexico. The full moon there is shining on bicentennial festivities. Yesterday was Revolution Day in La Peñita. My dad would have loved the fireworks, music and little kids dressed up in costumes. My dad had a string of patents and professional achievements, but he still loved a good parade.

I miss Daddy. I had breakfast in Santa Monica last week with a Facebook friend who had read "Virgin Territory" and identified with my memories of being raised on the High Plains of Texas. Blocks from the Pacific, we unconsciously lapsed into our native drawl, laughing when we both noticed. Neither of us talks that way now, but there are a few tell-tale signs that give us away as Texans. One of them is the phrase, "my daddy." Another is funeral food: pots of beans, homemade potato salad, Jell-o concoctions, casseroles, glazed ham, pounds of smoked brisket and acres of dessert. Do they mourn this way in Santa Monica? I don't think so. Arugula is not a comfort food. They do mourn this way in Mexico, only with tamales.

Dad would have delighted in my Mexican experience. There are Sam Jackson Humidaire units and drying systems at work in cotton gins all over the world, many in Mexico. I talked last night with a company engineer who had just returned from servicing some of them installed 45 miles south of the border towns of Presidio/Ojinaga, a peaceful area where Mennonites grow cotton, not drug crops. It is Dad's machinery that helps make growing cotton profitable in places as diverse and widespread as Tajikistan, Benin, Burkina Faso, Greece, Turkey, Australia, Egypt, Central and South America, South Africa, Israel and, yes, Afghanistan. If you wear cotton, the fiber in your garment has probably passed through a system designed or inspired by the man I called Daddy. He was brilliant and innovative.

But that daddy disappeared sometime during these last eight years. I can't say exactly when his pensiveness and dry humor turned unresponsive, or his thoughtful reflection ceased to take concrete form in vibrant conversation and repartee. Even this past year he'd come out with plays on words that would make our jaws drop because they were so funny. Did his departure begin under the guise of apathy and indifference, a sense of resignation generally identified with growing older? Did I mistake his waning passion for mellowing, instead of recognizing the black hole where there was no one there? I have no question about one thing: Alzheimer's sucks.

We opened a time capsule last night, after well-fed guests left and the house had cleared of all but family. It was a caramel corn container that Boy Scouts sell, filled with letters written by family members and then sealed shut with duct tape. The label on the lid read "Christmas Day, 1999. Do not open until Christmas, 2009." OK, we're a little late. But this is the first time the family has been together since 1999. So almost a year later than planned, we took turns reading our individual thoughts about the new millennium. Ashton, now a self-possessed college freshman, was surprised at the tight little wad of paper she'd scribbled as an angry eight-year old in a post-Christmas snit. "Mean Kindahl. Rude Savannah," she'd described her sisters. "I'm sorry," she said to them last night, all of the sisters sitting together, laughing uproariously at the image of that ranting little girl who had stapled shut her letter to the future.

That was the beautiful thing. We were laughing, all of us. Sweet Ashton was before us, her true image intact, untouched by the past. And, now that the sun is up, I realize that with yesterday's memorial, the true image of my dad was restored, as well. The silent and distant resident of Grace House was no more Daddy than that angry eight-year old is Ashton.

Sam Jackson's friends and family were there to share their stories and memories, to bring him to life -- his identity intact, sweet, solid, unbroken and whole. Hah! My dad with virgin qualities! Perhaps there's an Inner Guadalupe in us all.

 
 
 
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HUFFPOST SUPER USER
PJsThreeDogLife
"A large lady given to speaking her mind."
01:34 PM on 12/07/2010
Crom14 says, "I feel so alone in my grief." This is true for all of us, I think. No matter how many people hug, hold and help us...there's such an unbearable feeling of 'aloneness' inside. I recently lost a loved one to suicide caused by mental illness. All the well-meant words and kind acts are so appreciated, but they won't fill the empty place. I just want him back.
Thanks for sharing your story.
09:14 PM on 12/05/2010
What a wonderful, touching article. In wonderful relationships like these, even when they end with inevitable sadness for someone, there is always, "I wouldn't have missed it for the world" resting at the core. Thanks for sharing a sense of your father, your family and you. It was a treat and I'm sure he was also.
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PatA
~~LONG LIVE JUAN~~
03:03 PM on 12/05/2010
What a beautiful story. Thank you for sharing.
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crom14
09:32 AM on 12/05/2010
Beautiful story. I wish I could remember the good times. My parent is mentally ill, although it is brain based, it is not Alzheimers, I can only remember the bad times with her. It has made me feel sadness I have never known.
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Willow712
democratic socialst
12:57 PM on 12/05/2010
Mysympathies, Crom14. My Mom died in 2003, and my Dad then sat in a chair, watching the weather channel without sound for almost 4 years. He became very OCD, Anxious, confused and angry in those four years. I would take off work to drive him to the hospital or the Doctor's office, and he would tell them, "don't tell her anything. She's not my POA." So I would have to call my brother, to drive 65 miles so the doctors could tell him that my Dad was fine. He was angry, his voice was squeaky as if he had been yelling all night. He had guns loaded and hidden all over the house, in case the bad guys were to break in. I told him, "What happens if a cop has to come in to check if you are allright, and you don't have your hearing aid in? You will shot a cop." He unloaded all the guns, then put up strings around the entire fence. IOW, if the string is broken, someone was in his backyard. I too have a very difficult time remember him in my childhood or with his grandchildren. I look at pictures from the past, amazed at how much he changed. He's been gone for 4 years now. And I still feel guilty that I can't remember him from before.
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crom14
06:52 PM on 12/05/2010
Sending you a hug. It is so sad. I feel so alone in my grief. Bless you.
08:03 PM on 12/03/2010
My condolences, Susan. Very touching story. And yes, no doubt that Alzheimer sucks. I had a case in my family, too. The question that remains unanswered for me is: are people still the same person when they suffer from Alzheimer?
Throughout our whole life we go through change processes. Of course if we are mature adults we are different from the time when we were babies or teenagers. In fact we are changing every second: cells in our body and in our brain die all the time, new ones are formed. But most of our personality, our traits remain, at least the changes over time are not drastic. Alzheimer causes drastic changes, and I understand what you mean when you say your Dad disappeared sometime during these last eight years.
All the best,
Gerrit
www.vivocoaching.com/blog
02:24 AM on 12/05/2010
Thank you, Gerrit. You pose a good question, and a deep one. It may come down to trying to define what the essence of our identity is. It's easier to say what it's NOT when someone is angry, fearful or in pain, and they're doing something specific that is out of character like yelling or throwing things. Usually through a little tender patience we can restore them to their old "selves." But for most of us, unresponsive absence is a lot harder to deal with. I'm not an expert on the terminology. Is it called passive aggressive when you're met with apathy and indifference -- like it's YOU who aren't there? Only with an Alzheimer's patient, it's not something done on purpose to hurt anyone. Maybe one way of dealing with the absence there in the patient is to become more of who we are -- to be MORE loving, more patient, more clearly defined and intentional. And trust that the whole unpleasant experience will ultimately bring out more character in everyone concerned, here or hereafter.
03:08 PM on 12/06/2010
My grandmother is in late stages ALzheimers, and I always wonder if she's there inside. Maybe not knowing who we are or where she is, but deep inside- and not able to get thoughts out of her brain. She remembers stories, but not me, and now she can't tell her stories because she stopped speaking. I HATE THIS DISEASE, it totally sucks. It strips away a little at a time, and before you know it, they're gone.