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Metastatic Breast Cancer: Telling the Whole Story

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By now you have noticed that it is October, and that a pink haze has settled on the land. The message of "early detection saves lives" has been broadcast on every form of media available. But there is a part of the breast cancer story that is less "feel good" and less frequently mentioned -- woman living with metastatic breast cancer.

Have we gotten better at detecting breast cancer? Yes. Have we gotten better at treating this disease? Yes. But we haven't gotten good enough. Despite doing everything that we now can, about 25 percent of the women who are diagnosed with and treated for early-stage breast cancer will later learn that they have metastatic disease. An additional 4 to 6 percent of all breast cancer cases will be in women whose initial diagnosis is stage IV, metastatic disease.

Right now, about 150,000 people in this country are living with metastatic breast cancer. At this stage, the cancer can be treated -- and women can live for many years with stage IV disease -- but it is not considered curable. These women connect on websites like BCMets.org, AdvancedBC.org and BrainMetsBC.org to find support, get the latest research information, and to share their hopes and fears as they try to embrace what many refer to as "the new normal" -- living with metastatic disease.

These women, as Roni Caryn Rabin wrote in the New York Times, "...are not [leading] pink-ribbon lives: They live from scan to scan, in three-month gulps, grappling with pain, fatigue, depression, crippling medical costs and debilitating side effects of treatment, hoping the current therapy will keep the disease at bay until the next breakthrough drug comes along, or at least until the family trip to Disney World." Some will live for years; others won't be so lucky. Elizabeth Edwards comes to mind.

October 13 is Metastatic Breast Cancer Awareness Day, and I can't tell you how important it is that there is at least one day in October that is dedicated to acknowledging that not everyone is cured and not every cancer is found early. We need to stop congratulating ourselves on our progress and start focusing on figuring out why these women have not benefited from all the money we have raised. Reach out today to someone you know that represents the other side of breast cancer, the one that is not so pink. We will not have accomplished this goal as long as one woman dies of this disease!

You can learn more about metastatic breast cancer as well as find a list of resources and programs for women with advanced disease here at www.dslrf.org.