As we rally around, trying to distance or identify with the parent, Alex and those like him are all but forgotten. His life is seen as an example of what some must endure. But what about Alex? What about what Alex had to endure?
Barb knew some would doubt the words she typed were hers, because she needed a facilitator when she first began typing. Undeterred, she spent the next 10 years learning to type independently, one index finger jabbing at a letter at a time.
This is part two of an interview with Paula Durbin-Westby, an (at times) non-speaking autistic adult who made a YouTube video as an example of what happens when she tries to speak during periods when she cannot.
"I think the phrase 'non-speaking at times' captures my experience and also that of others who do have speech capabilities but can't always access them. Just because one can speak at times does not mean speech is a reliable form of communication for that person."