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Spinal Muscular Atrophy

Curiosity Never Killed the Cat

Alyssa Silva | Posted 12.01.2014 | Impact
Alyssa Silva

Let's begin by pointing out the obvious. I'm different and look different, in which case I find it completely normal that a child gets curious. In fact, I believe their curiosity is a great thing because without being curious and never asking, they'll never know.

11 Reasons Why Being In a Wheelchair Is Awesome

Alyssa Silva | Posted 07.23.2014 | Impact
Alyssa Silva

At the end of the day, this life is more than I deserve, so with a little humor, I'm here to set the record straight. Being in a wheelchair isn't so bad after all, and I've compiled a list that proves just that!

This Man's Home Has Essentially Turned Into A Private Concert Venue -- And He LOVES It

Posted 04.03.2014 | Good News

Musicians have been flocking to Nick Stanley's living room in Farmington, Maine, to play private concerts for the young man who cannot leave his bed. ...

Defining Your Inner Strength

Alyssa Silva | Posted 02.10.2014 | Healthy Living
Alyssa Silva

Strength is having hope where hope was once lost and holding onto faith even through the darkest of times. It's about finding the strength to move forward and leave your past behind, but never forgetting how you got to where you are in this moment in time.

My 6-Year-Old Teacher

Vanessa Contopulos | Posted 01.23.2014 | Impact
Vanessa Contopulos

From the beginning of our time together, Isabel moved my heart deeply. Without spoken language, she communicated through her eyes, the slight lifting of the corner of her mouth to form a little smile, and with movements of her tiny fingers.

Disabled in Disney

Alyssa Silva | Posted 11.27.2013 | Impact
Alyssa Silva

On Monday, Disney announced that they would be changing their theme park policy for guests who have disabilities.

A Night Spent With the New England Patriots

Alyssa Silva | Posted 11.03.2013 | Sports
Alyssa Silva

For the past few years, I have always wanted to attend a Patriots game at Gillette Stadium. Being from New England, I had attended the Bruins, Celtics, and Red Sox games, but had yet to cross the Patriots off my bucket list.

Hope Lights the Way in Providence, RI

Alyssa Silva | Posted 10.08.2013 | Impact
Alyssa Silva

Ever since I was a little girl, I've always been extremely passionate about raising awareness and funds for my disease, Spinal Muscular Atrophy. It started off with lemonade stands in the neighborhood with my friends, where I would dream about raising $100 for my cause.

Dare to Be Remarkable

Alyssa Silva | Posted 07.23.2013 | Impact
Alyssa Silva

I learned at a very young age that life is a precious gift, and living in a life of fear will only hold me back from chasing my dreams. This is the life I've been given, and I can promise you I'm always going to make the most of it.

WATCH: Inspiring Woman Living with Spinal Muscular Atrophy

HooplaHa | Posted 07.20.2013 | Healthy Living
HooplaHa

When Alyssa was just 5 months old, she was diagnosed with a genetic disease called Spinal Muscular Atrophy (SMA). The doctors told her family that she...

WATCH: Man's Ability To Laugh At Terminal Illness Will Make You Smile

Posted 04.15.2013 | Good News

A young man who suffers from a degenerative disease has made laughter his medicine of choice, and he's inviting the world to laugh with him. Shane...

For My Brother

Alyssa Silva | Posted 05.25.2013 | Good News
Alyssa Silva

One September afternoon, I was receiving an albuterol treatment to keep my lungs expanded and free from infection. Suddenly, there was a knock at our door: It was a police officer to tell my mom Adam had been hit by a truck while riding his bike.

Disabled Teen Hockey Player Raises $100,000 For Research

haddon.patch.com | Posted 12.12.2012 | Impact

Steven Potter ticks off the big things on his mind and they sound typical of any 15-year-old. He wants his license, he’s itching to get to college, ...

Watching Avery's Story, Thinking Of My Son

Linda Wachtel | Posted 07.01.2012 | Parents
Linda Wachtel

We are a family shaped by Jordan. We honor that by remembering him, by telling his story. And, like Avery's family, we also remember that we are part of a community of families.

Avery Canahuati, Whose 'Bucket List' Raised Awareness for SMA, Dies

Posted 05.02.2012 | Parents

Avery Canahuati, the nearly-6-month old baby with Spinal Muscular Atrophy (SMA) whose heartbreaking "bucket list" recently went viral, died yesterday,...

Avery's Bucket List: Parents Create Heartbreaking Website

The Huffington Post | Farah L. Miller | Posted 03.09.2013 | Parents

Avery Canahuati has never gone swimming or worn a Halloween costume, but she has received her first kiss. She is just 5 months old, and these three it...

Baby's Bucket List Blog Raises Awareness Of Spinal Muscular Atrophy, But What Is It?

Posted 04.30.2012 | Healthy Living

A newborn baby's battle with spinal muscular atrophy inspired her parents to start a bucket list blog. HULIQ reports on Avery's Bucket List blog, a...

Mistaken Child Abuse Allegations Led To Murder-Suicide

Posted 04.04.2012 | Denver

In 2008, 36-year-old William "David" O'Shell, a police officer, and his wife 25-year-old Tiffany Cuin-O'Shell, were found dead in the couple's Lakewoo...

Karen Longoria And The Hometown Heroes Project: Town Builds Home For Her Disabled Family

Posted 05.25.2011 | Impact

While single mother Karen Longoria was working hard to raise her three children and wage her own battle with breast cancer, she was dealt another diff...