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It Took Public Shaming Via Twitter to Get Big Insurer to Cover Grad Student's Cancer Care

Posted: 08/06/2012 11:08 am

By Wendell Potter


Aetna's had a lot to say lately about how  business is good. The company disclosed last week that it made $458 million in profits this spring, and said it expected to make more money this year than executives previously thought possible. The firm also signaled it set aside three quarters of a billion dollars from policyholders to buy back shares of its own stock instead of paying more claims. But a few days before that, Aetna's CEO got a real-world understanding of just how inadequate some of the company's policies are.

And thanks to Twitter, the rest of us got a better understanding of how U.S. health insurers are able to profit so handsomely from the inadequate policies they sell, especially to students.

A significant part of Aetna's revenues come from its student health plan business. The company contracts with many colleges across the country to provide coverage to students. Trouble is, those policies typically have low annual and lifetime limits -- as was discovered recently by Arijit Guha, a 31-year-old graduate student at Arizona State University who's been diagnosed with colon cancer. Guha was paying $400 a month for a policy that had a $300,000 lifetime limit. It didn't take long for his care, including surgery and chemotherapy, to quickly exceed that.

Facing a growing mountain of bills and the very real possibility of having to file for bankruptcy, Guha and his friends decided to set up a provocatively named website -- poopstrong.org -- and to use Twitter and other social media to raise money to pay the claims Aetna was denying.  

Tweeting as Poop Strong, Guha soon drew the attention of a customer service representative at Aetna and, ultimately, the big guy himself, CEO Mark Bertolini.

Here's an abridged version of how it went down:

Poop Strong: @Aetna's 4th qtr profit up 73%: "it continued to benefit from low use of health care." Helps they can ensure low use.

Aetna: @Poop Strong We care about our members. We want you to be empowered to be healthy and make informed decisions...Please know we're here to answer your questions and discuss your concerns.

Poop Strong: @AetnaHelp @Aetna That's so sweet you want me to be empowered. Does [Mark Bertolini] care to empower me by paying my $118k and counting in bills?...The thing is, I've needed you for the last 6 mos. Not for "support" and "to discuss concerns" but to pay my bills.

Another thread by some of Poop Strong's friends drew out Bertolini:

Bag of Moons: @mtbert You, sir, have blood on your hands. Man up & pay for @Poop_Strong's treatment, & for others like him. You don't need the $, they do

ItsLerama: My bud @poopstrong, a PhD student w Stage 4, was shamefully kicked off his insurance. @Aetna. Btw congrats on the $10.6M CEO salary @mtbert!

Mark T. Bertolini: @Its Lerama @ aetna We did not kick @poopstrong off his insurance. We are on the phone with him now to find a solution to his financial issue.

Nhojelttil: @mtbert @ItsLerema @Aetna @Poopstrong You did, in fact, do just that. Glad if you're fixing it now. A little bad PR goes a long way, huh?

Mark T. Bertolini: @nhojelttil That's not the case. His benefits did not cover anything. We paid hundreds of thousands in $ already. A call is all it takes.

Poop Strong: @mtbert @nhojelttil "A call is all it takes?" Does that mean if I call you you'll graciously offer to pay my bills? That'd be nice....Moreover, do you think it's morally justifiable to offer a flawed insurance product that doesn't cover catastrophes?

Poop Strong: @mtbert @nhojelttil I will have insurance again as of mid-August not be/c you were kind enough to eliminate lifetime caps on your own...But because you were forced to do so due to the new healthcare law (which on Aug. 1 made lifetime caps unlawful for student plans). Why did you offer such shi**y plans to begin with?

Poop Strong: @mtbert @nhojelttil True or False?: I am in this situation because your company offers a crappy product.

Poop Strong: @mtbert @nhojelttil And you could do more to help if you were more interested in helping than profit-maximizing.

Mark T. Bertolini: @Poop_Strong False. Why do you think the premium was so low? Do you look at your policy limits when u buy other insurance (auto)?

Poop Strong: @mtbert Are you suggesting I had a choice in the matter? Health insurance exchanges don't arrive until 2014.

Poop Strong: @mtbert  Moreover, isn't it morally reprehensible that you offer such a limited product? One that caps benefits so low?...One day's salary for you is $30,000. Surely you can spare that?

As it turned out, Bertolini eventually did decide he could spare that -- and more. He tweeted to Guha that Aetna would pay "every last penny" of his bills and added, "The system is broken, and I am committed to fixing it."

So this story may have a happy ending -- for Guha, at least, if his treatments are successful and Bertolini keeps his word. But what about all the other students, all the other people who can't draw a health insurance company CEO into a conversation?

As mcpeed commented on an ABC online story about Guha: "That's great and I'm glad for this student. But what about all the other people affected by this grossly unfair policy who don't have Twitter accounts and followings? Is the CEO of Aetna going to pay for all of their treatment too? Are they still going to lobby against the Affordable Healthcare Act which outlaws lifetime caps? I expect the CEO is a nice guy... but his company policies suck."

Continue this story and read more investigations at iWatch News

 
 
 

Follow Wendell Potter on Twitter: www.twitter.com/wendellpotter

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09:38 AM on 08/08/2012
Why are Republicans so worried about repealing the Affordable Care Act?

Do they not care about the AMerican people and their access to health care?

Are Republicans more interested in insurance company profits than your health care?
07:11 PM on 08/07/2012
This extreme yet not uncommon case shows how important it is for consumers (aka patients) to ask questions and make a lot of noise when needed if their insurance companies are not meeting their needs.

Right now, either because of ineptitude, confusion, or disregard, insurance companies are not covering provisions stipulated in the Affordable Care Act. I was refused coverage for preventive care treatment, but when I called and told the claims rep that my treatment was covered by Obamacare, she told me I would be reimbursed the $220 I had paid through my Health Savings Account.
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Zimpod
Lemony fresh victory shall be mine!
04:07 PM on 08/07/2012
"Mark T. Bertolini: @Poop_Strong False. Why do you think the premium was so low? Do you look at your policy limits when u buy other insurance (auto)?"

$400 a month is low??? Well maybe for this JA millionaire, but for a student that's rent! (and probably 1/3 of monthly income - at least!). Believe me, I can get a pretty sweet policy for my car for $200 a month - $400 would be full coverage w/o deductable! These people (business "leaders") are absolutely souless. They are not human!
11:24 AM on 08/07/2012
Happy to see this worked out for poopstrong, but these type of subsidized plans are unfortunately often limited, but his comment that the exchange would give him more choices is an absolute pipedream...
01:51 PM on 08/07/2012
don't know about that, but there definitely would not have been a lifetime limit. That is illegal under the health care act.
10:31 AM on 08/07/2012
WE DON’T KNOW HOW BAD OUR INSURANCE IS, UNTIL WE NEED IT:

The main reason we lack universal healthcare is that most Americans don’t know how bad our insurance really is.

A relatively few of us ever suffer the kind of medical disaster that leaves us on the hook for tens of thousands of dollars above and beyond our healthcare insurance. Only when that happens—when we face bankruptcy as well as death—do we realize that commercial insurance products do not protect us from financial ruin.

And then it’s too late.
____________________

In the mean time, those who are prudent-enough to set aside as much money as possible, for future medical disasters that never come, keep so much of money outside the economic system, that the overall economy suffers.

Fortunately, the Affordable Care Act is a big step toward preventing bankruptcy from joining our healthcare disasters.

Regards,
(($; -)}
Gozo!
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HUFFPOST BLOGGER
Wendell Potter
Analyst at the Center for Public Integrity, author
01:39 PM on 08/07/2012
You are absolutely right Gozo. Thanks for commenting.
11:48 PM on 08/08/2012
It's an absolute shame that in a country as prosperous and capable as America, we have millions of Americans who are forced to choose between proper healthcare and a roof over their head and food on the table.

Great post Gozo, and great article.
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HUFFPOST SUPER USER
josephebacon
10:40 PM on 08/06/2012
Amazed that this worked!
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HUFFPOST SUPER USER
chaz
10:02 PM on 08/06/2012
The ONLY reason we don't have universal single payer health care is because of Republicans,"conservatives" and especially tbaggers and of course the puppets who vote for them.

Keep electing Republicans,"conservatives" and especially tbaggers and keep getting killed.
HUFFPOST SUPER USER
Lansdowne11
08:15 PM on 08/06/2012
Our health care system must be that American exceptionalism I keep hearing so much about...
06:25 PM on 08/06/2012
Thanks, Wendell, for another insightful look into the grotesquely greedy insurance business in these United States of America.
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HUFFPOST BLOGGER
Wendell Potter
Analyst at the Center for Public Integrity, author
10:08 PM on 08/06/2012
Many thanks, kokobell616.
iridium53
Semper Fi
02:17 PM on 08/06/2012
Wendell,

With ACA, Healthcare Insurance companies, like Aetna, will still be in the mix.

And, toothless, weak, craven, worthless politicians will still be there - squashing the timid attempts by government to regulate these insurance companies and make them provide coverage.

As long as insurance companies get a generous, guaranteed medical loss ratio (required rate of return) for doing what government does at 30% of their costs, what is it that will substantively change?

American healthcare costs are rapidly rising. America is decreasingly competitive. Hence the rise of Ontario car manufacturing.

Nothing in ACA helps this.

And, nothing substantive changes as long as corrupt healthcare insurance companies are managed by venal, corrupt politicians on the take from corrupt healthcare insurance companies.
HUFFPOST SUPER USER
search4meaning
Democracy is the worst govt - except all others
02:16 PM on 08/06/2012
I think it would really be cool if we could keep the twitter-thing going by having EVERYONE WHO READS THIS this outstanding article (thank you once again, Mr. Potter) send a few tweets of their won to their twitter friends.

Sadly, most conservatives don't "do" new technology like twitter, they just stay home and watch Fox. But young people do, and it is CRITICAL that they come out and vote in November. Because the inventor of "Obamacare", Mitt Romney, is running on a platform to kill it. Poop Strong knows the score, "I will have insurance again as of mid-August not be/c you were kind enough to eliminate lifetime caps on your own...But because you were forced to do so due to the new healthcare law (which on Aug. 1 made lifetime caps unlawful for student plans). Why did you offer such shi**y plans to begin with?"

Obamacare's main flaw is that it doesn't go far enough. But thanks to Obama, health insurance executives like Mark T. Bertolini of Aetna no longer have complete freedom to "lower health costs" by DENYING CARE to people with stage 4 cancer.

Young people - you MUST COME TO THE POLLS in November. No joke - your life might depend on it.
02:01 PM on 08/06/2012
Awesome. The guy purchased a cheap policy that clearly covered up to 300k in care (3k/yr for 300k in potential benefits folks) and when he used the policy, up to the limits he bought, he flipped out and demanded more.

Welcome to F'n America. Where corporations are always the devil and the consumer never has any responsibility.
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search4meaning
Democracy is the worst govt - except all others
02:36 PM on 08/06/2012
You must be a lawyer who loves putting things in fine print.

Did it ever occur to you that most students don't have any idea how far $300k is going to go if you have a serious injury? Did it ever occur to you that insurance companies do very little, if not nothing, to educate buyers about how much coverage is actually needed? Did it ever occur to you that students may not even be given an opportunity to buy a "better" (read, vastly more expensive) policy that has more comprehensive coverage?

Insurance companies are selling products to YOUNG PEOPLE under a "Let the Buyer Beware" model of business - and you take the insurance company's side?

Blaming the victim is fun until it actually happens to you.
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03:37 PM on 08/06/2012
Greed is a sickness which mandates mistreatment of others. Time to mature beyond the adolescence of that money-grubbing worldview you adore.
08:12 AM on 08/07/2012
No, I prefer people to be responsible for themselves and not always blame someone or something else when they took a risk and lost.
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11:51 AM on 08/06/2012
$458 million in profit, this spring, CEO salary of $10.6 million and profits up 73%. HOW CAN ANY AMERICAN BE AGAINST THE NEW HEALTHCARE LAWS?? My co-worker, who is pregnant and doesn't support the new healthcare laws asked how the insurance companies are going to AFFORD to pay for her breast pump. So, puzzled by middle class America????
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missprissanna
the weight of the news nearly broke my back
05:07 PM on 08/06/2012
From what I see of middle class America... people like your co-worker, who evidently has insurance coverage?....she and those who think like her, are much more worried about what they may not "get", if everyone else has access to the same coverage and care that she does.....

Bizarre no longer adequately describes just how crazy, selfish and greedy our country has become and it just seems to get worse every day...
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05:28 PM on 08/06/2012
Her concern is for the insurance company and she is sure her rates will increase to pay for new coverage. I did mention that rates are increasing every year with fewer benefits..blank face. SMH!
08:26 PM on 08/06/2012
How can they afford her new breast pump? Um...she pays for it with her policy that is if it is in her policy.

The reason why your co-worker is against the new health care laws is because they do NOT know! They have never worked in a medical office or other medical setting to know how such a plan could affect their lives, and it doesn't do nearly enough!