05/01/2012 01:20 pm ET Updated May 02, 2012

Avery's Bucket List: Avery Lynn Canahuati, Whose 'Bucket List' Blog Raised Awareness For SMA, Dies

Avery Canahuati, the nearly-6-month old baby with Spinal Muscular Atrophy (SMA) whose heartbreaking "bucket list" recently went viral, died yesterday, her father wrote on the family's website.

Avery's dad, Mike Canahuati, said:

Avery passed away yesterday sometime around 3pm due to pulmonary complications related to SMA. In short, one of her lungs collapsed and she went into cardiac arrest. I immediately performed CPR on her and was able to bring her back to life, but only for a brief period of time before she passed away shortly after arriving at the hospital. Avery's passing this quickly came as a complete shock to all of us, as she had just been given a thumbs up at her last doctors appointment only three days ago.

He also shared a letter -- written (like the rest of the blog) in Avery's voice -- in which she asked one more time for people to lend a hand in raising awareness about SMA:

When people think of me, I hope they'll also think of all my friends who have been through this and who are going through this now. But what I really hope for is that when people think about me, they will not waste time sitting there feeling sorry for me, rather I hope they will STAND UP in honor of me and all of my friends (past, present, and future). And they can do so by spreading awareness and helping to fund a cure for my friends.

Canahuati posted two final heartwrenching items that the baby checked off her list: to "not let SMA take my smile away" and "take one last breath, then take one more before [going] to live" with her relatives who have also passed away. Dad says they will continue to tell the baby's story through "a few archived blogs that Avery never posted."

Visit to see all previous posts and get the family's instructions on how to donate money to benefit SMA research.



Avery's Bucket List