If you receive a terminal diagnosis, you may be shocked or not, but one thing is very clear, you have some important decisions to make. Others can advise you and/or express their concerns, but ultimately it is you, and only you, who must decide what course of action to take. Do you want to try anything and everything available, both conventional and unconventional? Or, is your inclination to seek hospice or some other form of palliative care? Or, somewhere in between? The decision is yours.
Remember that everyone who expresses a point of view on what you should or should not do has a vested interest. Loved ones may feel strongly about a course of action other than the one you choose. It is also important to recognize that doctors are in the business of saving and preserving lives and, unfortunately, are focused on avoiding malpractice lawsuits as well. As a result, many doctors view the option of palliative care or hospice as a personal and professional failure and therefore do not introduce this option readily. Instead, most doctors are inclined to pursue ongoing medical treatment to slow the progression of the disease.
- Before going to the appointment, remind yourself that this is your body, your life that you will be talking about. You have a right to your own point of view and your own beliefs and preferences regarding the end of your life's journey.
If you haven't already done so, legally document your wishes using the above mentioned forms. Be sure your documentation is in accordance with the laws of the state in which you live. Go to your state government website to get current forms. If you are interested in using the Five Wishes form, be sure it is legally recognized in your State. You might find this website helpful.
It is remarkable how many people with a terminal diagnosis report a heightened sense of being alive for the remainder of their journey. It is my wish that those of you facing a terminal diagnosis embrace your journey, using your remaining time to share yourself with your loved ones and to bring peace, balance and completion to your life.
Please feel free to leave a comment below, or contact me at judithjohnson@hvc.rr.com
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