RARE DISEASES

IMPACT

Update on Two Heroes Against Cancer and Hunger

HEALTHY LIVING

How to Get Researchers to Notice an Ultra-Rare Disease

PARENTS

The Day We Were Told Not To Have More Children

IMPACT

A Tale of Two Heroes Against Cancer and Hunger

PARENTS

Dear (Not So Dear) Tuberous Sclerosis

PARENTS

A Letter To Myself Two Years Ago

PARENTS

To The Woman In The Elevator Who Asked About This Bracelet

IMPACT

The Gift of a 'Rare' Child

TECHNOLOGY

Social Media Can Facilitate the Grieving Process

IMPACT

I Lost My Son to ALD. Now I Fight to Save Yours.

HEALTHY LIVING

When Disease Names Honor the Infamous

HEALTHY LIVING

6 Ways To Discover Our Value Beyond The World Of Work

IMPACT

The Song I Wrote for My Son

IMPACT

Finding an Outlet in the Face of Rare Cancers

HEALTHY LIVING

Rare Disease Day: An Einstein Researcher's Personal Involvement

PARENTS

Bedtime Stories With A Rare Disease Mom

IMPACT

Rare Diseases Are More Common Than You Think

HEALTHY LIVING

At Least It's Not Cancer -- A Prejudice That Harms Patients

IMPACT

The Children's Inn at NIH: 25 Years of Getting Caring Right

IMPACT

The Lizard Woman

BLACK VOICES

How I'm Surviving A Very Rare Disease

IMPACT

Cycling for FA Research and Awareness From the USA to Ireland

IMPACT

Two Research Grants Approved to Help Late Onset Tay Sachs

HEALTHY LIVING

HEALTHY LIVING

Living Under the Lens With a Disability

HEALTHY LIVING

6 Tips For Coping With A Debilitating Disease

IMPACT

February 28, 2015 Is Rare Disease Day

HEALTHY LIVING

FDA Approves 23andMe's DNA Test, But Not the One It Halted Earlier

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